RD-ACTION & DG Sante Workshop are holding a workshop for ERNs on December 6-7, in Rome, Italy.
RD-Action workshop for ERNs
International fund raising for congenital adrenal hyperplasia
International fund raising for congenital adrenal hyperplasia (IFCAH) is a private fund, aimed to promote research on Congenital Adrenal Hyperplasia (CAH).
RD-Action Recommended Practices for Data Standardisation
RD-Action published a document with Recommended Practices for Data Standardisation in the Context of the operation of European Reference Networks in order to collect data in a standardised manner, which will allow it to become syntactically and semantically interoperable.
ERN Info Day Rome, Italy
The Italian Ministry of Health is organising and ERN information day on October 16th in Rome, Italy at the Ministry of Health. This meeting is intended to create collaboration among the Italian RCs working on the ERN.
Newsletter September 2017
Annual meeting International Association of National Public Health Institutes
This year’s annual meeting will be hosted by the Istituto Superiore di Sanità, Rome, Italy on October 22-25, 2017.
International Congress on Research of Rare and Orphan Diseases
The International Congress on Research of Rare and Orphan Diseases will take place in Bologna, Italy, from 7th-10th March 2018.
European Conference on Rare Diseases and Orphan Products
The European Conference on Rare Diseases and Orphan Products will take place on 10-12 May 2018, in Vienna, Austria.
ICE 2018
The 18th International Congress of Endocrinology will be held on from 1-4 December, 2018 in Cape Town, South Africa.
EU public consultation survey on digital single market
The EU public consultation survey on transformation health and care in the digital single market is open until the 12th of October 2017. The purpose of this consultation is to define the need and scope of policy measures that will promote digital innovation in improving people’s health, and address systemic challenges to health and care systems.
