On Tuesday July 7th at 18:00 – 19:00 CET an Endo-ERN webinar about “Genetic Obesity Disorders caused by Leptin-melanocortin Pathway Defects” is organised.
The webinar will be held by Dr. Erica van den Akker from Erasmus MC: University Medical Center Rotterdam in the Netherlands.
The video from the EU Commission’s DG Health & Food Safety (SANTE) with Endo-ERN Coordinator prof. Alberto Pereira, prof. Franz Schaefer (ERKNET), prof. Marta Mosca (ReCONNECT) & prof. Jean-Yves Blay (EURACAN) is illustrating what the activities and the added value of the European Reference Networks are, particularly from the health professionals’ point of view.
The video is available HERE
On Wednesday July 1st at 17:00 – 18:00 CET an Endo-ERN webinar about “Update on the consensus on congenital hypothyroidism: a patient centered approach” is organised.
The webinar will be held by Prof. Dr. Michel Polak, Paediatric Chair of the MTG ‘Thyroid’ from Hôpital Universitaire Necker – Enfants malades
In the context of COVID-19 pandemic and launching of the ‘COVID-19 Clinical Management Support System’, DG SANTE is organising a series of webinars to support clinicians and other healthcare professionals at the frontline who treat patients with COVID-19.
The next webinar will be held by Prof. Maurizio Cecconi, President Elect of the European Society of Intensive Care Medicine and Head of Department Anaesthesia and Intensive Care Units, Humanitas Research Hospital, Lombardy in Italy, and by Prof. Jozef Kesecioglu, President of the European Society of Intensive Care Medicine, expert on ethics and intensive care, Head of Intensive Care [...]
On May 12th 2020, a successful Endo-ERN webinar about COVID-19 & Endocrine conditions with increased risk was organized. The webinar was chaired by coordinator of Endo-ERN Prof. Alberto Pereira, Prof. Eelco de Koning, both from Leiden University Medical Center in the Netherlands and by Prof. Wiebke Arlt from University of Birmingham in the UK.
The recording of this webinar and presentations are published on the website of the European Commission. View the recording and presentations here.
For an overview of all previously organized & upcoming scheduled Endo-ERN webinars, click here.
In the context of COVID-19 pandemic and launching of the ‘COVID-19 Clinical Management Support System’, DG SANTE is organising a series of webinars to support clinicians and other healthcare professionals at the frontline who treat patients with COVID-19.
Feel free to forward this invitation to any other colleague that might be interested in the topic.
We would like to invite you to the webinar that will take place on:
Tuesday 12 May at 18.00 CET
6th Webinar: ‘COVID-19: Endocrine conditions with increased risk – Endo-ERN’
The webinar will be held by Prof. Alberto Pereira, Coordinator of Endo-ERN, [...]
The ESE Rare Disease Committee, alongside Endo-ERN, have engaged in an initiative to collect data concerning specific groups of patients with rare endocrine conditions, who are also affected by COVID-19. We believe this is a global unmet need and requires swift, concerted and coordinated action.
The European Registries for Rare Endocrine Conditions (EuRRECa) project, supported by both Endo-ERN and ESE, has developed an e-reporting tool (e-REC) which has been fully operational for over a year within a robust governance and ethical framework and which does not require individual patient consent. The platform is now open to all [...]
In the context of the current COVID-19 pandemic, the upcoming European Conference on Rare Diseases & Orphan Products (ECRD) will take place ONLINE on 14-15 May.
The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.
The ECRD 2020 theme “The rare disease patient journey in 2030” recognises that the next decade holds great potential for improvement and that while we cannot predict the future, we all have a role in preparing for it. See the
We are proud to announce that the manuscript from Work Package 5 “Diagnostics & laboratory analysis” in collaboration with EU COST action, entitled “Peptide Hormone Analysis in Diagnosis and Treatment of Differences of Sex Development: Joint Position Paper of EU COST Action “DSDnet” and European Reference Network on Rare Endocrine Conditions” has been accepted for publication in European Journal of Endocrinology.
To view the publication, click here.
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