This opportunity is open to a wide range of developers, including academics, individual researchers, startups, industry stakeholders, organisations from diverse settings, and patient-led initiatives. Support is available for both new device development and the adaptation of existing products to better serve paediatric and orphan populations.
Successful applicants will receive guidance from two dedicated innovation coaches to help advance their development goals. Assistance is offered across various stages of the product lifecycle, with tailored support in areas such as:
✔ Business and funding advice
✔ Network building
✔ Technical guidance
✔ Regulatory support
✔ Infrastructure for (pre-)clinical testing
✔ [...]
Continue reading →
Save the date and register now!
After the success of the previous ISPAD/VAPES meetings local organizers (Varna Pediatric Endocrine Society, VAPES) aim to attract any interested pediatric endocrinologists, pediatricians, postgraduate trainees, medical students and nurses in 2025.
Topics covered at this event include:
Turner Syndrome McCune-Albright Syndrome Early-onset Autoimmune Diabetes
You can check out the complete programme including details of the international speakers and how to register.
Continue reading →
An Endo-ERN endorsed event from member UZ Leuven – check out the full programme. REGISTER now or send an email for more information.
Organisers: Prof. Dr. Anne Rochtus, paediatric endocrinology & Marleen Jannis, administrative staff member
9:00: Welcome with coffee and tea Morning – Plenary sessions 09:20 Welcome (Prof. Anne Rochtus)
09:30 Prader-Willi syndrome from the past to the present (Prof. Annick Vogels)
10:00 Benefits of growth hormone for young and old (Prof. Anita Hokken-Koelega)
10:30 Overview of studies and new therapies (Prof. Anne Rochtus and Dr. Tessa Wassenberg)
11:00 Coffee [...]
Continue reading →
Endo-ERN has endorsed an upcoming course by Endo-ERN HCP, Leiden University Medical Center (LUMC).
5th CAPITAL – June 5-6, 2025
You are invited to register for the 5th Care for Pituitary Adenomas Leiden (CAPITAL) multidisciplinary workshop in Leiden, The Netherlands, for two inspiring days of sharing best practices in pituitary care. We recommend attending CAPITAL together with all members of your multidisciplinary team, so you can discuss new insights and ideas during spare moments and reflect together on your own practice and future directions.
The previous editions of CAPITAL were highly interactive, with challenges and protocols shared, [...]
Continue reading →
The European Commission is hosting workshops in several countries with a focus on patient rights in cross-border healthcare and European Reference Networks. Registration is now open for the Oradea covering Romania-Hungary workshop taking place 5 February 1000-1700 (EET).
Upcoming other events
28 February, 2025 Strasbourg
Contact DG Sante for more information.
Continue reading →
The Endo-ERN Transition of Care Working Group, invites you to complete this survey.
The survey aims to gather valuable insights into the current practices, challenges, and opportunities in managing the transition of care for patients with rare endocrine diseases, focusing on both pediatric and adult care perspectives.
Who should complete the survey?
Healthcare professionals directly involved in transition care for patients with rare endocrine conditions, from both pediatric and adult sides.
Time required: Approximately 15–20 minutes.
Dissemination Request
We kindly ask that the survey link be shared with all Endo-ERN members, including Reference Centres and associated [...]
Continue reading →
Register now for this event organised and featuring Endo-ERN members focused on the topic of transition.
Hosted in Rome, event dates are 12-13 February, 2025. Topics and speakers include:
Adrenal insufficiency and congenital adrenal hyperplasia: the new therapeutic approaches, Svetlana Lajic, Karolinksa University Hospital, Stockholm, Sweden
Fertility issues in adrenal adenomas and carcinomas, Nicole Reisch, Ludwig Maximilian University, Munich, Germany
Management of bone disease in parathyroid disorders, Eva Kassi, National and Kapodistrian University of Ahtens, Greece
Management of bone and growth disorders in DSD, Corinna Grasemann, Katholisches Klinikum Bochum, Germany
View the full [...]
Continue reading →
The 12th ESE Young Endocrinologists and Scientists (EYES) Meeting is taking place on 26-28 September 2025, in Milan, Italy.
More information is available here.
Continue reading →
The European Congress of Endocrinology (ECE) will take place in Prague, Czech Republic, from 9 – 12 May 2026.
The Endo-ERN Symposium will take place Tuesday, 12 May, 11:20-12:50. The tentative agenda is:
Introduction on Endo-ERN Initiatives
Alberto Pereira/Olaf Hiort Endo-ERN coordinators
Transversal Working Group on Genomic Testing
Thomas Eggermann, paediatric endocrinologist, University Hospital Aachen
The Paediatric Thyroid Cancer Registry
Hanneke van Santen, paediatric endocrinologist, Prinses Maxima Centrum, Utrecht
The Reduced Life Expectancy and Treatment Options for RTHbeta
Irene Campi, endocrinologist, Istituto di Ricovero e Cura a Carattere Scientifico
Continue reading →
