WINNER: 2025 Patient Partnership Good Practice Challenge

Trophies-Banner-Patient-Partnership-Good-Practice-Challenge-2025-2

Congratulations to Johan de Graaf and Petra Bruegmann for their recent win of the Eurordis 2025 Patient Partnership Good Practice Challenge! The aim of this initiative is to recogise outstanding examples of collaboration between patient representative and healthcare professionals within European Reference Networks (ERNs). This initiative has spotlighted innovative practices that enhance patient engagement and foster valuable partnerships between patients and healthcare professionals across the Networks, improving healthcare for people living with a rare or complex condition.

Johan and Petra are leading an initiative that aims to provide some light by mapping inequities in endocrine drug provision across Europe. The project consists of understanding endocrine medicine shortages by collecting data through a set of three surveys.

This entry was posted in General.