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  • Rare Endocrine Conditions

    Endocrine Conditions

    Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions

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    • MTG1Adrenal
    • MTG2Disorders of Calcium & Phosphate Homeostasis
    • MTG3Genetic Disorders of Glucose & Insulin Homeostasis
    • MTG4Genetic Endocrine Tumour Syndromes
    • MTG5Growth & Genetic Obesity Syndromes
    • MTG6Hypothalamic and Pituitary Conditions
    • MTG7Sex Development & Maturation
    • MTG8Thyroid
  • About Us

    About Us

    Endo-ERN is a network of 100+ Reference Centres (RCs) in 27 EU member states+Norway that offers access to clinical experts for patients with rare endocrine conditions.  

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    For Professionals

    Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.  

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    For Members

    If you work at a member institution this page will help with your Endo-ERN contributions.  

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  • For Patients

    For Patients

    Access to rare disease expertise without the need to travel is a core ERN objective.  Our ePAGs contribute to all Endo-ERN activities.  

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  • Rare Endocrine Conditions
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Endo ERN
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General

International Rare Diseases Research Consortium

Posted on July 11th, 2019July 15th, 2019

The knowledge of a raredisease is often spread throughout the world. That is why LUMC Leiden is a participant in Irdirc, a consortium with more than 40 member organizations from all over the world. In this video Prof. Aartsma-Rus explains how exactly they work together.

Continue reading →

This entry was posted in General.

ERNs newsletter

Posted on July 9th, 2019July 9th, 2019

The first common newsletter about all ERNs has been published by DG Health and Food Safety.

Subscribe here for the newsletter

 

Continue reading →

This entry was posted in General.

June newsletter

Posted on July 5th, 2019September 30th, 2019

Read the June edition of the Endo-ERN newsletter now! The ESPE2019 ERN symposium program is available , first common newsletter about all ERNs , talk about meetings, and much more!

Click here for the newsletter

Continue reading →

This entry was posted in General.

Brexit

Posted on July 4th, 2019

Updated information about the impact of BREXIT on access to IT tools and CPMS was presented by the European Commission during the 8th ERN Coordinators Group Meeting on Monday June 24th in Brussels. Please click here for the full presentation

 

 

Continue reading →

This entry was posted in General.

Vacancy: International PhD programme in experimental medicine

Posted on June 14th, 2019

Three year PHD programme available at Università degli studi in Milan, Italy in Experimental medicine.

Continue reading →

This entry was posted in General.

Vacancy: Post doc position

Posted on June 14th, 2019

The IRCCS Istituto Auxologico Italiano in Milan, Italy, has a post-doc position available in the Lab of Endocrine & Metabolic Research.

Continue reading →

This entry was posted in General.

May newsletter

Posted on June 13th, 2019July 9th, 2019

Read the May edition of the Endo-ERN newsletter now! We posted our pictures from ECE, talk about meetings, including the first patient meeting for Eastern European countries, and much more!

Continue reading →

This entry was posted in General.

EJP RD Pillar 2 annual retreat

Posted on June 6th, 2019June 11th, 2019

The Pillar 2 of the EJP RD has organized its first Annual Retreat which took place at the Istituto Superiore de Sanità (ISS) in Rome (Italy) from 22nd to 24th of May 2019.

Continue reading →

This entry was posted in ERN, EU, General.

The first patient meeting for Eastern European countries on thyroid diseases

Posted on May 28th, 2019June 11th, 2019

On May 10th and 11th, The Bulgarian organisation VIOM (a patient organisation for thyroid diseases) organised the first patient meeting for Central/South-Eastern European countries on thyroid diseases, at the same time as the First Scientific Conference for Central and Eastern Europe on the Thyroid Diseases.

Continue reading →

This entry was posted in General, MTG8.

April Newsletter

Posted on May 13th, 2019June 13th, 2019

Read the April edition of the Endo-ERN newsletter now! We have new CPMS standard operating procedures, a new MTG1: Adrenal chair, and we announce the date and location of the General Assembly 2020!

Continue reading →

This entry was posted in General.
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Recent News

TELL US: Are you attending the ECE this May?

Are you attending the European Congress of Endocrinology (ECE) taking place in Prague 9-12 May, 2026? If so please let us know if you are [...]

REGISTER: L’ipoglicemia in età pediatrica: dalle raccomandazioni internazionali alla pratica clinica (Childhood Hypoglycemia)

This session is dedicated to the presentation of the International Recommendations on the evaluation and management of persistent hypoglycemia in neonates, infants, and children. The [...]

DISCOVERY: Rare diseases are part of the human story: from prehistory to over 30 million Europeans today

More than 30 million people in Europe live with a rare disease today. Although rare diseases are often perceived as modern medical challenges, scientific research [...]

ENDORSED: Parliamo di Ma.R.E. in Italia

This endorsed Endo-ERN event is taking place 6-7 March, 2026 at Western Plus Tower Hotel, Via Lenin, 43| Bologna.   English programme Italian Programme

REGISTER: ERN-EYE X Endo-ERN webinar Blepharophimosis Syndrome (BPES)

Register now for a joint ERN-EYE X Endo-ERN webinar taking place at 17:30 (CET) on Friday 27 February, Blepharophimosis Syndrome (BPES): Integrating Genetic, Endocrinological Ocular, [...]

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