European Registries for Rare Endocrine Conditions


This week the proposal for the European Registries for Rare Endocrine Conditions (EuRRECa) was approved by the European Commission.

The call for proposals for Projects on Rare Disease Registries for approved ERNs was published by the EU Commission on December 21st, 2016 and Endo-ERN has just received approval. Endo-ERN covers an exceptionally large number of rare conditions across the age span. Whilst some conditions are covered in established international disease registries, there are several that are not. EuRRECa aims to ensure that Endo-ERN achieves its mission of driving up standards of clinical care and patient-centred research through maximizing participation in disease registries. The Grant approved by the EU will help Endo-ERN accomplish this aim.

This project will be led by Prof. Faisal Ahmed (Work Package e-Health & ICT chair) from the University of Glasgow, joined by 12 Endo-ERN members.


  • University of Glasgow, United Kingdom
  • University of Lübeck, Germany
  • Leiden University Medical Center, The Netherlands
  • University of Ghent, Belgium
  • Instituto Auxologico, Italy
  • Assistance Publique, France
  • Semmelweis University, Hungary
  • Great Ormond Street Hospital for Children NHS Trust, United Kingdom
  • Erasmus University, The Netherlands
  • Ludwig-Maximilians-University, Germany
  • Karolinska University Hospital, Sweden
  • University Hospital Motol, Czech Republic
  • Hannoversche Kinderanheilanstalt, Germany
    1. Click here for all 71 Endo-ERN members.

      This entry was posted in ERN, EU.