Endo-ERN will be actively present at ECE2018! On Tuesday the 22nd of May a special Endo-ERN Symposium will take place from 9:45 until 10:45 and you will be able to find us at our own exhibition stand, together with EuRRECa (The European Registry for Rare Endocrine Conditions), for the whole duration of the congress.
On May 22nd, from 9:45 to 10:45 the Endo-ERN Session will be held demonstrating concrete examples of added value for patient care, led by Jerome Bertherat. Endo-ERN coordinator, Alberto Pereira, will open the session with a presentation on Endo-ERN structure and virtual consultation of rare disease cases using the EU-ERN CPMS. The paediatric chair of Endo-ERN, Olaf Hiort, will discuss case specific examples of DSD and Hypogonadotropic hypogonadism as models for caring for rare disease across the life span. After that ePAG patient representative Manuela Brösamle will speak of the patient and family perspectives of DSD.
Endo-ERN has a shared exhibition stand together with EuRRECa for the whole duration of the congress. You will be able to view posters, personally talk to Endo-ERN and EuRRECa experts, and pick up some nice goodies! So don’t hesitate to drop by for a chat!
Can’t attend ECE yourself to ask your questions? You can also send us a question via our twitter @rareendoern! We’ll make sure to pass on your questions.