The X-linked Hypophosphatemic Rickets (XLH) conference will take place on September 26, 2018, in Athens, Greece.
X-linked Hypophosphatemic Rickets (XLH)
Congenital Hyperinsulinism International
The Congenital Hyperinsulinism International conference will take place on September 25 and 26, 2018, in Athens, Greece.
Newsletter Summer 2018
Read the summer edition of the Endo-ERN newsletter now! The issue contains new information about Endo-ERN & EuRRECa at the ESPE2018 meeting, an update on the Clinical Patient Management System, and the first guidelines & consensus papers endorsed by Endo-ERN.
IFCAH Call October 2018
The international fund Congenital Adrenal Hyperplasia (IFCAH) is opening a call for proposals in October 2018!
RD-Connect: an international platform for rare disease data analysis and data sharing
All ERN members are invited to join RD-Connect!
RD-Conntect is an EU-funded integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research. It provides user-friendly tools for data analysis and links different data types – omics (e.g. genomics), clinical information, patient registries and biobanks – into a common resource.
RD-Connect Webinar: RD-Connect Genome-Phenome Analysis Platform
On Thursday 6th September 2018, 15:00 CEST Steven Laurie, from Centro Nacional de Análisis Genómico, Barcelona, Spain, will host a webinar on Genomic analysis quick and easy: RD-Connect Genome-Phenome Analysis Platform.
RD-Connect Webinar: RD-Connect Registry & Biobank Finder and Sample Catalogue
On Tuesday 18 September 2018, 15:00 CEST Mary Wang, from Fondazione Telethon, Milan, Italy, will host a webinar on Finding registries and biosamples in just a few clicks: RD-Connect Registry & Biobank Finder and Sample Catalogue.
9th Biennial Congress of the European Society of Endocrine Surgeons
The Executive Committee has made the decision to postpone the Congress in Athens. A decision regarding a new congress date will be taken soon. A further announcement will follow.
The 9th Biennial Congress of the European Society of Endocrine Surgeons will take place in Athens, Greece from the 28th of May until the 30th of May, 2020.
Newsletter May 2018
Read the Endo-ERN May newsletter now! In this edition we announce our presence at the European Society for Paediatric Endocrinology meeting, you can read reports on multiple meetings such as the CAPITAL meeting, and the CPMS WebEx Webinars hosted by our operational helpdesk!
Care for Pituitary Adenoma course
The 2nd workshop for multidisciplinary teams caring for pituitary tumours, CAPITAL, was held on June 7 and 8, in Leiden, The Netherlands and was a big succes.
