On the 14th of June from 15:00-16:00, our Endo-ERN operational helpdesk is hosting the second of our CPMS Webinar sessions for all Endo-ERN reference center representatives to attend, via the WebEx system.
Endo-ERN CPMS Webinar 2
Endo-ERN CPMS Webinar 1
On the 12th of June, from 15:00-16:00, our Endo-ERN operational helpdesk is hosting the first of 2 CPMS Webinar sessions for all Endo-ERN reference center representatives to attend, via the WebEx system.
Fourth Italian Endo-ERN Meeting
The fourth Italian Endo-ERN meeting will be held on the 7th of June, in Padova, Italy.
Newsletter April 2018
Read the Endo-ERN April newsletter now! This edition contains the date for the Endo-ERN General Assembly 2019, more information about our stand at ECE2018, a video on CPMS, and much more!
General Assembly 2019
The Endo-ERN General Assembly 2019 will be held on the 12th of March, 2019, in Budapest, Hungary!
Rare Disease Registries Kick-off
EuRRECa was present at the Rare Disease Registries Projects kick-off meeting in Luxembourg on 17th April.
Video: Getting started with CPMS
The European Commission has released a video on how to get started with the Clinical Patient Management System (CPMS).
A good example of multidisciplinary expert care bridging Endo-ERN with BOND
Fibrous dysplasia of bone: a good example of multidisciplinary expert care bridging Endo-ERN with BOND.
Newsletter March 2018
Read the Endo-ERN March newsletter now! This edition contains an EU press release on Rare Diseases day and the 1 year anniversary of ERNs, announcement of an Endo-ERN and EuRRECa stand at ECE2018, Poster presentation at ECRD and much more!
European Conference on Rare Diseases and Orphan products patient poster session
Endo-ERN will present a poster at the European Conference on Rare Diseases and Orphan products. The poster will be presented by our European Patient Advocacy Group patient representatives Johan de Graaf, Petra Brügmann, and Diana Vitali.
