On the 29th and 30th of November, 2018, Karolinska Institutet and the European Society for Paediatric Urology are hosting a master course on DSD in Stockholm, Sweden.
The programme will consist of lectures and case presentations by delegates. Registration is possible via email to marie.nurmi-johannesen@sll.se
From 5 until 7 December 2019, the sixth ENEA Workshop on ParaSellar Lesions will take place in Athens, Greece.
The European NeuroEndocrine Association is hosting the sixth workshop on ParaSellar Lesions. The online abstract submission opens on 25 January and Early bird registration is available until September 15th, 2019.
Preliminary details on the programme will become available in December, 2018.
In October 2018, Christiaan F. Mooij pubished a dissertation on Cardiovascular Risk and Steroid Metabolism in Congenital Adrenal Hyperplasia (CAH).
Read the September edition of the Endo-ERN newsletter now! This issue reports about our time at ESPE2018, gives an update on the Clinical Patient management system & the newly Operational Helpdesk, and the succesful audit of seven Endo-ERN centers.
The 6th International Summer School on Rare Disease and Orphan Drug Registries took place from September 10 to September 14, 2018, in Rome, Italy. The course was addressed to professionals and patients involved in, or planning, the establishment of a rare disease registry, particularly within the European Reference Networks (ERNs).
Seven Endo-ERN Reference centers were assessed during the audit last month and all seven passed! The audit consisted of seven documentation assessments and one on-site visit.
On October 16th from 14:00-15:00 CET, the ERN IT support will host a CPMS Webinar via WebEx, with the topic: ‘CPMS for new users: Authorisation- Authentication- First login’.
On November 21 and 22 the 4th Conference on European Reference Networks will take place in Brussels, Belgium. Ten participants per network are invited to attend and Endo-ERN will be present with adult and paediatric endocrinologists, as well as patient representatives.
Endo-ERN was present at the European Society of Paediatric Endocrinology Meeting 2018. For the whole duration of the meeting we had a stand together with EuRRECa and there was a special Endo-ERN symposium.
On Wednesday September 26th 15:00 CEST , Marco Roos from Leiden University Medical Center, The Netherlands, will host a webinar on Linking up all those data: why should we make data FAIR.
