1st European Thyroid Cancer Workshop

Thyroid Cancer is a rare disease that requires an international and coordinated collaborative approach. Currently several European networks are involved in propagating patient care, research and education in the field of thyroid cancer. For reasons of quality and efficiency, these different organizations aim to improve their coordination and collaboration with regard to thyroid cancer.

As part of this collaborative approach, we will jointly organize the first European Thyroid Cancer Workshop. This workshop will be held digitally on November 13th and 20th, between 5pm and 7pm, and is open to all experts involved in thyroid cancer. Details of the program and [...]

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1st European Thyroid Cancer Workshop

Thyroid Cancer is a rare disease that requires an international and coordinated collaborative approach. Currently several European networks are involved in propagating patient care, research and education in the field of thyroid cancer. For reasons of quality and efficiency, these different organizations aim to improve their coordination and collaboration with regard to thyroid cancer.

As part of this collaborative approach, we will jointly organize the first European Thyroid Cancer Workshop. This workshop will be held digitally on November 13th and 20th, between 5pm and 7pm, and is open to all experts involved in thyroid cancer. Details of the program and [...]

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EJP RD – Second Research Training Workshop call is now open

EJP RD – Second Research Training Workshop call is now open

The call is open from the 31st August until 28th of September 2020

The goal of the workshops is to train researchers and clinicians affiliated to ERN-Full Members or – Affiliated Partners in relevant topics on rare diseases research. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Moreover, the workshops will be aiming to provide a cross-ERN added value.

The workshops will be delivered as two-day events. Topics can be proposed by clinicians/investigators affiliated to ERN-institutions or [...]

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Endo-ERN General Assembly 2021

The virtual 5th Endo-ERN General Assembly will be held on Tuesday & Wednesday 13 & 14th of April 2021.

Tuesday 13th of April 2021

09:30 – 10:30 hrs Steering Committee & Advisory Board meeting
11.00 – 12.45 hrs GENERAL ASSEMBLY
13:30 – 16:00 hrs Meet and interact with your MTG co-workers

Wednesday 14th of April 2021

10:00 – 11:45 hrs GENERAL ASSEMBLY
12:30 – 15:00 hrs Meet and interact with your MTG co-workers

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eECE 2021

The annual meeting of the European Society of Endocrinology will be again held online.

Endo-ERN will be present with:

A joint symposium together with the ESE-RD committee on Wednesday May 26th from 10:30 – 12:00 CET Virtual booth where informational materials, newsletters and posters will be available for all participants

Symposium programme – Wednesday May 26th:

10:30 – 10:45 Endo-ERN: Strengthening patients and physician collaboration

Prof. Dr. Olaf Hiort, Germany

10:45 – 11:10 Endo-ERN, EU ERN network– where it started Living with “Hypophosphatemia” Transitional care path for patients

Prof. Agnès Linglart, France

11:10 – [...]

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Endo-ERN Scientific Symposium

On Monday September 7th from 16:45-17:45 CET, Endo-ERN will have a Scientific Symposium at the European Society of Endocrinology fully digital congress.

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Endo-ERN webinar: Monogenic insulin resistance – diagnosis, treatment, and insights for common disease

On Wednesday September 16th 15:00 – 16:00 CET an Endo-ERN webinar about “Monogenic insulin resistance – diagnosis, treatment, and insights for common disease “ is organised.

The webinar will be held by Prof Robert K. Semple from University of Edinburgh.

Severe insulin resistance (IR) may lead to initial clinical presentation to a wide variety of clinical specialities, and diagnosis is commonly unnecessarily delayed. In most cases IR results from an interaction between obesity and polygenic predisposition to IR, but in a subset of patients a single underlying genetic change can be identified. The first genetic forms of severe IR were [...]

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