eECE 2021

The annual meeting of the European Society of Endocrinology will be again held online.

Endo-ERN will be present with:

A joint symposium together with the ESE-RD committee on Wednesday May 26th from 10:30 – 12:00 CET Virtual booth where informational materials, newsletters and posters will be available for all participants

Symposium programme – Wednesday May 26th:

10:30 – 10:45 Endo-ERN: Strengthening patients and physician collaboration

Prof. Dr. Olaf Hiort, Germany

10:45 – 11:10 Endo-ERN, EU ERN network– where it started Living with “Hypophosphatemia” Transitional care path for patients

Prof. Agnès Linglart, France

11:10 – [...]

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Endo-ERN Scientific Symposium

On Monday September 7th from 16:45-17:45 CET, Endo-ERN will have a Scientific Symposium at the European Society of Endocrinology fully digital congress.

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Endo-ERN webinar: Monogenic insulin resistance – diagnosis, treatment, and insights for common disease

On Wednesday September 16th 15:00 – 16:00 CET an Endo-ERN webinar about “Monogenic insulin resistance – diagnosis, treatment, and insights for common disease “ is organised.

The webinar will be held by Prof Robert K. Semple from University of Edinburgh.

Severe insulin resistance (IR) may lead to initial clinical presentation to a wide variety of clinical specialities, and diagnosis is commonly unnecessarily delayed. In most cases IR results from an interaction between obesity and polygenic predisposition to IR, but in a subset of patients a single underlying genetic change can be identified. The first genetic forms of severe IR were [...]

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New Endo-ERN publication: Disease characteristics of MCT8 deficiency: an international, retrospective, multicentre cohort study

The following Endo-ERN manuscript has been accepted for publication, entitled: Disease characteristics of MCT8 deficiency: an international, retrospective, multicentre cohort study (Stefan Groeneweg et al., 2020) also written with collaboration of six members of the Endo-ERN Main Thematic Group Thyroid. The manuscript was published in the July issue of The Lancet Diabetes & Endocrinology.

To view the publication, click here.

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Vacancy: PhD Candidate Endocrinology

Looking for an interesting research opportunity? The Division of Endocrinology of the Department of Medicine at the Leiden University Medical Center (LUMC) has a PhD position available in a dynamic, multidisciplinary clinical research team, in which you will study rare endocrine conditions through real world data collected in registry based European projects, including EuRRECa and EuRR-Bone. Are you the candidate we are looking for?

For more information about this vacancy please click here

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ERN interactive map

The interactive map hosts a searchable interface with details about the ERNs, including multi-lingual factsheets about ERNs and locations of members and affiliated partners.

The data concerned includes ERN names and details, ERN clinical centers names and details (Members, Associated National Centers, Hubs). No personal data are included, functional mailboxes are indicated for the ERNs which provided one. You can look for the information from different points of views: by selecting one or more ERNs, one or more countries, one or more clinical unit. You can also select one or more ERNs, and then restrict to one or more countries, [...]

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Endo-ERN webinar: Understanding Lipodystrophy

On Wednesday July 8th 15:00 – 16:00 CET an Endo-ERN webinar about “Understanding Lipodystrophy” is organised.

The webinar will be held by Prof Giovanni Ceccarini from Obesity and Lipodystrophy Centre, Endocrinology Unit, Azienda Ospedaliero Universitaria Pisana in Italy and Dr. Rebecca Sanders, patient representative of Lipodystrophy UK & representative of European patients inside the Registry Board of ECLip.

Lipodystrophy syndromes are a group of rare (estimated prevalence of 3/1.000.000 if excluding HIV-related forms) and heterogeneous disorders characterized by the complete or partial loss of adipose tissue, in the absence of a nutritional deprivation or [...]

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