EJP RD ERN Workshop aiming at sharing participants’ expertise on research in different areas of spinal dysraphism and opening the way to new research projects

In the context of EJP RD’s ERN Workshops, an in-person workshop titled “Trans-ERN Working Group for Spina Bifida (Spinal Dysraphism): Workshop for future research on innovative diagnostics and interdisciplinary treatment” aimed at sharing participants’ expertise on research in different areas of spinal dysraphism and opening the way to new research projects is being organised by Centre de Référence Spina Bifida – Dysraphismes C-MAVEM, Centre Hospitalier Universitaire de Rennes.

The face-to-face event (in-person on site) will take place over two days on March 31st – April 1st, 2022 at the Centre Hospitalier Universitaire de Rennes in Rennes, France.

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EuRRECa Annual Project Group Meeting 2022

EuRRECa is holding its 4th annual meeting online on Monday 14th February 2022. This meeting will showcase the activities of the EuRRECa project which was launched in 2018 and the online platform allows us to welcome all professionals, scientists and patients and patient groups who have an interest in rare endocrine and bone conditions.

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ERN Workshop on Endocrine cancer: A challenge in adults and children – 4 May 2022

In the context of EJP RD’s ERN Workshops, a face-to-face workshop on “Endocrine cancer: A challenge in adults and children” aimed at giving an update on the molecular background and clinical management of rare endocrine malignancies is being organised by Prof. Barbara Jarzab of the M. Sklodowska-Curie National Research Institute.

The in-person event will take place on May 4th, 2022 at the M. Sklodowska-Curie National Research Institute in Gliwice, Poland.
The workshop is open by prior registration and selection to endocrinologists, oncologists, surgeons, radiotherapists, internists and pediatricians, pathologists, radiologists, nuclear medicine specialists who are employees of affiliated to an [...]

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Inauguration Professor Faisal Ahmed

Faisal-Ahmed

On 1 March 2019, Faisal Ahmed was appointed as professor of medicine/endocrinology at the Leiden University.

Professor Ahmed’s Inaugural Lecture will (at last) take place Monday, April 3, 2023 in Leiden. You can now REGISTER to attend in-person.

If you would like to watch the live stream bookmark this page and tune in on the day.

 

Please note the event time is 1600-1700 (CET).

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ECE 2022

Endo-ERN will be physically present at ECE2022 with a joint ESE & Endo-ERN symposium. Furthermore Endo-ERN will have its own stand, next to the stand of our EuRRECa registry.

Monday 23 May 11:50 -13:20
ESE & Endo-ERN Joint session: Retrospect and prospect

11:55 – 12:15 Roadmap of Endo-ERN – reflection of the first 5 years
Prof. Alberto Pereira & Prof. Olaf Hiort

12:15 – 12:35 Highlights of the ESE Rare disease committee
Prof. Simona Glasberg

12:35 – 12:55 Joint guideline activities of ESE and Endo-ERN – Scientific perspective and patient expectations
Prof. Anna Nordenstrom

12:55 [...]

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