Register now for this event organised and featuring Endo-ERN members focused on the topic of transition.
Hosted in Rome, event dates are 17-18 January, 2024. Topics and speakers include:
Empowering andrology through the registries – Faisal Ahmed, Endo-ERN MTG7, Glasgow, UK Long-term outcomes in transition-aged CAH: a guide to choose the most appropriate therapy – Svetlana Lajic, Endo-ERN MTG1 Representative, Paediatric chair – Stockholm, Sweden Growth Hormone therapy in patients with rare diseases: dosages, duration, pros and cons – Danilo Fintini, Rome, Italy
View the full programme (, 412 KB). [...]
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The Radboudumc Adrenal Masterclass presents state of the art lectures and workshops on clinical and pathophysiological aspects of adrenal diseases. It serves an audience of adult and pediatric endocrinologists, clinical fellows, internists and clinical chemists who are involved in the management of patients with adrenal disease.
The duration of the masterclass is 4,5 days, from Monday to Friday. Many national and international experts contribute to an intensive program that encompasses all major adrenal disorders: hyper- and hypocortisolism, congenital adrenal hyperplasia, incidentaloma, adrenocortical cancer, pheochromocytoma/ paraganglioma and primary aldosteronism. Apart from overview lectures on theoretical and practical issues, there will be [...]
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Register now for this upcoming webinar. If you have a particular interest in CAH you will find other videos on our YouTube:
Non classic CAH – An underdiagnosed condition: Non classic CAH an underdiagnosed condition – YouTube
Gonadal dysfunction in males with CAH: Gonadal dysfunction in males with CAH – YouTube
Update on Congential Adrenal Hyperplasia: Update on congenital adrenal hyperplasia – YouTube
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Endo-ERN has partnered with Endocrine Connections to support the collaborative research efforts of our members in the network. In the last 18 months that has resulted in the publication of 19 articles.
These articles are of interest with an average of 690 downloads and 1378 pageviews. An impressive 13 of the publications have been cited with no doubt more to come.
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the most up-to-date impact summary to find out more.
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To help Endo-ERN members plan more effectively, recurring meetings have been set for some of the MTGs. see our manual
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MTG experts will receive an invite directly. If you do not please contact the CPMS helpdesk.
MTG1: Every 2 months, 1st Thursday @1500
Thursday 7 Sep @15:00
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MTG2: Every month, 2nd Monday @13:00
Monday 11 Sep @13:00
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MTG3: Every [...]
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The programme for the next installment of EClip is now available! Featuring international speakers topics include:
Mechanisms underpinning adipose dysfunction and metabolic disease in generalized lipodystrophy The adipocyte response to ionizing radiations New human leptin variants Current status of the EClip Registry
Full Programme (, 2 MB)
To register please email: eclip2023@teseoricerche.it
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Mark your calendar and register now for the ERICA & EJP RD Joint Conference.
Hosted by the ERICA coordinating office in Amsterdam, no doubt these will be 2 informative days.
Register NOW
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The new Rare Barometer survey on newborn screening for rare diseases is now live!
It should take no more than 20 minutes to complete and closes on July 23, 2023.
Through asking questions on the possible benefits and disadvantages of screening newborns for rare diseases, for example in terms of anxiety, access to care or adjustments to family life, we will make sure that your opinion is taken into account when shaping the future of newborn screening.
This survey is open to people living with a rare disease and their family members from any country in the world. It [...]
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Two exciting opportunities are available at one of Endo-ERN’s reference centres!
Both positions are available at the laboratory of Prof. Luca Persani at Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere Scientifico (Milan, Italy) to work in the field of congenital thyroid disorders.
You will find a detailed job description and application instructions here: APPLY NOW (, 339 KB)
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You are kindly invited to participate in a survey exploring testosterone methodology in clinical units and laboratories throughout Europe. Endo-ERN members UZ Leuven and Ghent University Hospital are managing the survey.
Currently, different methods are used to measure testosterone and SHBG, hampering harmonized clinical use of (free) testosterone. With this survey, we want to map current clinical practices on methods to measure testosterone and SHBG in clinical units and laboratories in Europe.
The results of this survey will be used to propose harmonization efforts for testosterone and SHBG measurements.
Access the [...]
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