After the definite approval from Eurordis in August, Endo-ERN has added 5 new patient representatives to the team.
If you are interested in becoming a patient representative, check out our How to become an ePAG web page!
General
Newsletter August 2017
The Endo-ERN August 2017 newsletter covering the activities of Endo-ERN for the past months is now available!
After only 5 months of being operational the European Reference Network on rare Endocrine conditions (Endo-ERN) has made a lot of progress. These months have been directed at deciding a specific strategy for active recruitment of engaged members. This was initiated at the first General Assembly in March 2017 by the sign up lists of interested members in work packages and this has continued since then. The Main Thematic Group (MTG) chairs and the Work Package (WP) chairs have steered the identification of [...]
General Assembly 2018
The second Endo-ERN general assembly will be held in Lübeck, Germany on Thursday the 22nd of February, 2018!
Last year the LUMC in Leiden hosted the general assembly. This year Universitätsklinikum Schleswig-Holstein in Lübeck, will be the host. All 71 RCs part of Endo-ERN will be represented at this General Assembly.
More details on the programme will follow later.
Future call
The first ERNs were launched in March 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States. The 24 established networks are now developing their joint activities on rare and complex diseases. Once this structure has been put into place the opportunity is expected to arise to create more ERNs and for RCs to join existing ERNs.
Endo-ERN is on Twitter
The Twitter page for Endo-ERN is online.
Follow the page to stay updated on news regarding ERNs, Endo-ERN, Paediatric and Adult Endocrinology, meetings and workshops, and much more.
Video reportages European Reference Networks
After a successful launch of the European Reference Networks earlier this year, the 24 established networks are now developing their joint activities on rare and complex diseases. The added value for patients and their families will become visible in the coming months.
To illustrate the potential of the ERNs the European Commission has produced four video reportages, with real-life case studies: of an Italian patient with bone disorders, a Dutch heart patient, a Spanish girl who underwent a transplantation and a French representative of kidney patients. Telling their personal stories, we can show different aspects of the ERNs. A fifth, [...]
Ombudsman announces Award for Good Administration winners
The European Ombudsman, Emily O’Reilly, celebrated the range and quality of the nominations for the Award for Good Administration in a ceremony in Brussels on Thursday.
Launched in October, the Award attracted 90 nominated projects from the main EU institutions as well as many agencies and other bodies.
Prizes were awarded in 7 categories with the overall Award for Good Administration 2017 going to the Commission’s DG Health whose nominated unit developed EU collaboration in the sharing of vital information and expertise to help millions of Europeans suffering from rare diseases.
International Days of Clinical Endocrinology
The 60th International Days of Clinical Endocrinology (Henri-Pierre-KLOTZ) will take place on June 8th and June 9th 2017 in Paris, France. Theme of the conference will be “From the shortest to the tallest”.
Symposium on the Calcium Sensing Receptor (CaSR)
The 3rd international symposium on the Calcium Sensing Receptor (CaSR) will take place from May 11th to May 13th in Florance, Italy.
The symposium will bring together basic, translational and clinical scientists from different disciplines who study the molecular biology, physiology, and pathophysiology of the CaSR and clinical disorders of CaSR function.
3rd DSDnet Training School 2017
The 3rd DSDnet Training School will take place from September 28th to September 30th in Budapest, Hungary as a postgraduate level course. The DSDnet Training School 2017 is under the topic: “Promoting Research in DSD”.
The Training School is aimed at Professionals from COST Countries in their early stages of career, from a medical or a scientific background.
