The CPMS webinar schedule for January 2018 with links to register to participate (only registered participants will receive the link to join the webinar). We encourage all Endo-ERN members to participate.
CPMS Webinar Schedule January 2018
General
Newsletter November 2017
Read the Endo-ERN Newsletter November 2017 now to find out more about the Clinical Patient Management System, the future of health, and the ERN Coordinators & Hospital Managers information day this month.
ERN Information day Rotterdam
On November 17th, 2017, Erasmus MC, Rotterdam hosted an ERN info day on ‘the role of hospital managers in shaping the future of ERNs’. Alberto Pereira (Endo-ERN Coordinator), Willy Spaan (LUMC CEO), and Enrique Terol (DG SANTE) were present.
First version Clinical Patient Management System (CPMS) live!
On Monday November 20th, 2017 the first version of the Clinical Patient Management System (CPMS) went live.
International fund raising for congenital adrenal hyperplasia
International fund raising for congenital adrenal hyperplasia (IFCAH) is a private fund, aimed to promote research on Congenital Adrenal Hyperplasia (CAH).
EU public consultation survey on digital single market
The EU public consultation survey on transformation health and care in the digital single market is open until the 12th of October 2017. The purpose of this consultation is to define the need and scope of policy measures that will promote digital innovation in improving people’s health, and address systemic challenges to health and care systems.
New ePAGS
Newsletter August 2017
The Endo-ERN August 2017 newsletter covering the activities of Endo-ERN for the past months is now available!
After only 5 months of being operational the European Reference Network on rare Endocrine conditions (Endo-ERN) has made a lot of progress. These months have been directed at deciding a specific strategy for active recruitment of engaged members. This was initiated at the first General Assembly in March 2017 by the sign up lists of interested members in work packages and this has continued since then. The Main Thematic Group (MTG) chairs and the Work Package (WP) chairs have steered the identification of [...]
General Assembly 2018
The second Endo-ERN general assembly will be held in Lübeck, Germany on Thursday the 22nd of February, 2018!
Last year the LUMC in Leiden hosted the general assembly. This year Universitätsklinikum Schleswig-Holstein in Lübeck, will be the host. All 71 RCs part of Endo-ERN will be represented at this General Assembly.
More details on the programme will follow later.
Future call
The first ERNs were launched in March 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States. The 24 established networks are now developing their joint activities on rare and complex diseases. Once this structure has been put into place the opportunity is expected to arise to create more ERNs and for RCs to join existing ERNs.
