Members of the Main Thematic Group (MTG) 8: Thyroid met in Paris, at Necker Enfants Malades University Hospital, on the 23rd of January 2019 to discuss the ongoing work and progress of the MTG and it’s subgroups. Chair of MTG8, Michel Polak, wrote a short report about the meeting.
On the 30th of January the second ERN Symposium took place in the Leiden University Medical Center (LUMC) in Leiden, The Netherlands.
Per February 1st 2018, our adult chair of the Main Thematic Group of Pituitary, Nienke Biermasz, was appointed as professor of Medicine at the LUMC/Leyden University. This Friday the 18th of January, 2019 the official ceremony will take place where she will officially accept her new position, by giving her inaugural lecture in Leiden (Academy building Leiden University).
Between September 2017 and November 2018 Endo-ERN ePAG, Johan de Graaf, succeeded in completing The European Patients’ Academy (EUPATI) course together with approximately 50 European colleagues.
Read the December edition of the Endo-ERN newsletter now! Meet our new CPMS Operational helpdesk and read about the many upcoming events.
The European Commission has published the full report on the 4th ERN conference, held in Brussels, Belgium, on the 21st and 22nd of November, 2018.
Read the November edition of the Endo-ERN newsletter now! We report on the 4th ERN conference, update on the Clinical Patient Management System, and show a new video made by the EU commission on the functioning of the ERNs!
On December 6th we were at the CPMS workshop for ERN experts in Brussels, Belgium. The European Commission hosted this workshop to inform the employees of the operational help desks of the different ERNs of the functions of the CPMS and the best way to go about solving problems that might come up.
RD-Action published a report on the conclusions and next steps from the workshop ‘How ERNs can provide added value in the area of clinical research’.
The Italian National Centre for Rare Diseases, Istituto Superiore di Sanità, recently published the article ‘Art and Science’ in the Journal Lancet Neurology
