Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
Standards of Quality of Care to be developed in the eight main thematic groups (MTGs) to ensure consistent care for all patients across Europe. And, as these are often life-long, chronic conditions,
consistent care across the patient’s life.
Objectives: Create evidence-based clinical practice guidelines and reference ranges for hormone assays for the various disease subgroups (MTGs)
The representatives for WP7 Standards of Quality of Care are:
You can contact the representatives of WP7 “Standards of Quality of Care” directly via email at standardsqualitycare@endo-ern.eu or use the contact form below.
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