The Endo-ERN newsletter is out now! Read more about the joint webinar from ESE, Endo-ERN and ESPE, upcoming webinar, CPMS Newsletter, ESPE 2022, Call 4 new ePAG Advocates and much more!
Endo-ERN Newsletter June 2022
Endo-ERN Newsletter June 2022
CPMS Newsletter Summer 2022
Endo-ERN webinar: For a prolonged use of antithyroid drug in children with Graves’disease
On Thursday September 29th at 17:00 – 18:00 CET an Endo-ERN webinar about “For a prolonged use of antithyroid drug in children with Graves’disease” will be given by Juliane Leger from Hôpital Universitaire Robert Debré, France and Edward Visser from Erasmus MC: University Medical Center Rotterdam, the Netherlands.
Graves’ disease is much rarer in children than in adults. It may occur at any age during childhood but its frequency increases with age, peaking in adolescence. There is no specific cure for the disease. Antithyroid drugs (ATD) are the first-line treatment but they are used for various lengths of time. Alternative [...]
Endo-ERN webinar: The challenging diagnosis of TSH-omas and RTHbeta – a case-based discussion
On Monday July 4th at 16:00 – 17:00 CET an Endo-ERN webinar about “The challenging diagnosis of TSH-omas and RTHbeta: a case-based discussion” will be given by Luca Persani and Irene Campi from Istituto Auxologico Italiano – Istituto di Ricovero e Cura a Carattere Scientifico, Italy.
TSH secreting pituitary adenomas are rare tumors causing central hyperthyroidism. This a rare entity, encompasses TSH-secreting adenomas (TSHoma) and Resistance to Thyroid Hormone (RTHβ) due to THRB mutations. The differential diagnosis between these two conditions remains a clinical challenge in some cases and indeed diagnostic delay and inappropriate treatments still occur, leading to a [...]
Meet our new ePAG Diana Kwast-Hoekstra
I would like to introduce myself to you as a new member of the Endo-ERN ePAG MTG1, from the end of May 2022. I have been nominated by the Dutch Adrenal Society NVACP and from the 25th of May I will take over from Mr. Johan Beun, whom does intend to retire in the summer of 2022.
My connection with adrenal disorders is that I myself since 2016, have been suffering from steroid-induced adrenal insufficiency and diabetes due to prednisone use, in severe asthma.
In my search for information about this adrenal disorder and its treatment, I came into contact [...]
Endo-ERN General Assembly 2023
The 7th Endo-ERN General Assembly will be held on Tuesday & Wednesday 4th & 5th of April 2023 in Amsterdam.
Tuesday 4th of April 2023
09.00 – 10.00 SC/AB Meeting
10.30 – 16.30 Programme General Assembly
18.00 – 23.00 Social Programme (More information will follow in time)
Wednesday 5th of April 2023
08.30 – 09.00 Morning Coffee and Tea
09.15 – 13.30 Programme General Assembly
13.30 – 14.30 Farewell lunch
Endo-ERN Newsletter April-May 2022
The Endo-ERN newsletter is out now!
Read more about ECE2022, upcoming joint webinar with ESE, Endo-ERN and ESPE, 1st Endo-ERN clinical practice guideline and much more.
A joint webinar from ESE, Endo-ERN and ESPE
Join us for the first joint rare disease webinar from ESE, Endo-ERN and ESPE discussing:
Essential insights for the transition from paediatric to adulthood care in rare pituitary disorders
Chairs: Violeta Iotova (Bulgaria), Nienke Biermasz (Netherlands) and Evangelia Charmandari (Greece)
The session will follow the programme below:
Introduction from the Chairs Mapping of the current transition of care for patients with pituitary disease at Endo-ERN Reference CentersDr Savi Shiskov (Bulgaria) Presentation of a use case illustrating unmet needs from the patient perspective.
Patient/parent representative Discussion and proposal for next steps [...]
