First Endo-ERN Clinical Exchange program participant has arrived!

The first Endo-ERN participant of this exchange program is Savi Shishkov, an endocrinologist in training at the the “St. Marina” University Hospital, and a assistant in the Department of Internal Medicine of the Medical University in Varna, Bulgaria. He was motivated to apply for this fellowship because of his interest in rare endocrine disease, and expanding the international cooperation between ERN HCPs. He has started his exchange to the Leiden University Medical Center under the supervision of Endo-ERN coordinator prof.dr. A.M. Pereira Arias, and pituitary MTG leader prof.dr. N.R. Biermasz on October 5th. During the four-week program, an insight into [...]

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Bone Curriculum Symposium and the Pre-Symposium on Rare Bone Diseases

The Bone Curriculum Symposium is a continuous structured educational lecture cycle on bone. It includes bone biology, physiology, pathophysiology, calcium and phosphate metabolism and covers bone, calcium and phosphate disorders, osteoporosis, diagnosis, management and treatment.

Furthermore, interactions of the skeleton with other organ systems are addressed. A full Bone Curriculum lecture cycle is covered by three consecutive yearly symposia. Participants of three symposia are accredited the Bone Curriculum Course Certificate. The intention of the Bone Curriculum is to provide high quality continuous education for clinicians interested in, seeing or treating patients with osteoporosis or bone diseases and is a structured [...]

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Adrenal masterclass 2022

The Radboudumc Adrenal Masterclass presents state of the art lectures and workshops on clinical and pathophysiological aspects of adrenal diseases. It serves an audience of adult and pediatric endocrinologists, clinical fellows, internists and clinical chemists who are involved in the management of patients with adrenal disease.

The duration of the masterclass is 4,5 days, from Monday to Friday. Many national and international experts contribute to an intensive program that encompasses all major adrenal disorders: hyper- and hypocortisolism, congenital adrenal hyperplasia, incidentaloma, adrenocortical cancer, pheochromocytoma/ paraganglioma and primary aldosteronism. Apart from overview lectures on theoretical and practical issues, there will be [...]

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ESPE science symposium online

The ESPE science symposium aims to promote the development of an interactive network between clinicians and researchers, helping to reduce the gap between research and patient care. It will also provide the means to disseminate new scientific knowledge in the community of paediatric endocrinology. The symposium is organized every two years by a Local Organizing Committee (LOC) selected through an application process by the ESPE Science Committee.

Its focus will be ‘Congenital adrenal hyperplasia: from molecular medical research to clinical application’ and it will be supported by the Endo-ERN and the ESPE DSD Working Group.

The symposium will consist of [...]

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EJP RD ERN Research Training Workshop Call

The European Joint Programme on Rare Diseases has launch the ERN Research Training Workshops funding opportunity. The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full  Members or – Affiliated Partners in relevant topics on research in rare diseases. Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Moreover, the workshops will be aiming to provide a cross-ERN added value.

The workshops will be delivered as two-day events. The costs for the workshop organization will be covered up to a limit [...]

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Endo-ERN symposium: Growth & Genetic Obesity Syndromes – Prader Willi Syndrome (PWS) Clinical management of transition of care

On Tuesday November 16th at 14:00 – 17:00 CET an Endo-ERN symposium with multiple speakers within the main thematic group of Growth & Genetic Obesity Syndromes is organised.

Program:

Prader Willi Syndrome (PWS) Clinical management of transition of care

2:00 – 2:30 Introduction – PWS as a model of hypothalamic obesity (Maithé Tauber- FR)

2:30 – 3:00 PWS and transition of care – focus on psychology (Tony Holland – UK)

3:00 – 3:45 PWS and transition of care – endocrine care of the young adults
Adrenal insufficiency and hypogonadism (Laura De Graaff – NL)
Growth hormone treatment [...]

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Endo-ERN webinar: Overgrowth syndromes Beckwith Wiedemann syndrome and other rare conditions

On Tuesday September 7th at 17:00 – 18:00 CET an Endo-ERN webinar about “Overgrowth syndromes: Beckwith Wiedemann syndrome and other rare conditions” will be given by Frédéric Brioude from Hôpital Armand-Trousseau in France.

Overgrowth syndromes are a heterogeneous group of rare disorders characterized by generalized or segmental excessive growth, that can be associated with other features, including macrocephaly or cognitive impairment. These syndromes are caused by either genetic or epigenetic anomalies affecting factors involved in cell proliferation and/or the regulation of epigenetic markers. Overgrowth syndromes are frequently associated with an increased risk of cancer (embryonic tumours during infancy or carcinomas [...]

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Vacancies: Phd positions – Better estimates of hormonal exposure to improve diagnosis and treatment in endocrine diseases (BEED-ED)

Are you interested in improving hormone measurements and implement your research findings into clinical practice?

In a joint research project, the departments of Endocrinology at Ghent University and KU Leuven are currently hiring two enthusiastic and highly motivated PhD researchers to participate in our new research project “Better estimates of hormonal exposure to improve diagnosis and treatment in endocrine diseases”. This project is funded by the TBM program of FWO Vlaanderen (Applied Biomedical Research with primary social finality) for a period of 4 years and will start October, 1st 2021.

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