Endo-ERN Training & Education May

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Welcome to the second dedicated Endo-ERN training and education newsletter.  There are many educational opportunities that involve network members and provide the opportunity to learn directly from experts in rare endocrine conditions.  

To ensure that you receive this dedicated newsletter which will showcase endorsed events, webinars, relevant national meetings, and congresses please update your preferences following the instructions detailed below.  

Enjoy the read!

Endo-ERN team

 

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Endo-ERN GA: Summary

Endo-ERN co-coordinators Alberto Pereira and Olaf Hiort welcomed 143 representatives from 93 reference centres, as well as 13 ePAGs in Copenhagen for the Endo-ERN General Assembly (GA). Taking place Friday, 9 May and Saturday, 10 May just before the start of the Joint Congress of ESPE and ESE. This is a short summary of the work package presentations.  

LAST CALL: 5th CAre for PITuitary Adenoma Leiden (CAPITAL) Course

Endo-ERN has endorsed an upcoming course by Endo-ERN HCP, Leiden University Medical Center (LUMC).

5th CAPITAL – June 5-6, 2025

You are invited to register for the 5th Care for Pituitary Adenomas Leiden (CAPITAL) multidisciplinary workshop in Leiden, the Netherlands.  

VIP REGISTRATION: World Orphan Drug Congress 2025

Endo-ERN is delighted to be a partner of The World Orphan Drug Congress Europe taking place 27-29 October, 2025 in Amsterdam, the Netherlands. Network members are eligible for a complimentary VIP registration for this event. 

LEARN: MOOC Diagnosing Rare Diseases

Now open! A facilitation window for the MOOC Diagnosing Rare Diseases: from the Clinic to Research and back is open from Monday, May 12, until Friday, July 4.  You can access the course here.  During this period, experts and mentors will be available online to answer participants’ questions and stimulate insightful discussions throughout the course.  

REGISTER: Upcoming webinars

Endo-ERN experts continue to deliver informative webinars that increases the expertise in the network.  

June:  Novel monitoring tools to detect chronic over or under treatment in children with CAH

Cushing’s Syndrome 

Congenital combined pituitary hormone deficiency in Europe 

Rare disease research and value of the registries 

September:  Genotype-phenotype correlations in CAH

Register now for these upcoming webinars.  Remember if you cannot attend live, register anyway and you will receive a recording.  

REGISTER: Conferences and Training Events

Upcoming events that might be of interest to you or your team:

June:  SDMregistries Virtual Meeting

July:  16th European Paediatric Neurology Society Congress 

September:  ESPE-OSCAR Science Symposium 

ESE Young Endocrinologists and Scientists (EYES) Meetings 

October:  International Consortium for Fibrous Dysplasia and McCune-Albright Syndrome (ICFDMAS)

December:  European Neuroendocrine Association 

PARTICIPATE: WP7 Survey on Endorsement

The endorsement of consensus statements, clinical practice guidelines and scientific meetings by Endo-ERN is something that is considered helpful to Endo-ERN members. WP7 would like to set up a clear strategy for this, and are interested to hear your views and opinions on this topic. Please fill in the (very short) survey on this!

FUNDING CALL: FIRENDO X Endo-ERN Collaboration

The FIRENDO (Filiere Maladies Rares Endocriniennes) network will award a grant for the period 2025-2027 to fund a collaborative research project between a FIRENDO member organization and an HCP (Health Care Provider, a healthcare institution) that is a member of the Endo-ERN (European Reference Network on Rare Endocrine Conditions) outside France.

 

UPDATE: Newsletter Preferences

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This entry was posted in Newsletter.