All news items of Aimee Casey

As we come to the end of 2023, we want to reminder all members that a minimum of 1 patient virtual consultation should be held [...]

Endo-ERN ePAG Diana Kwast-Hoekstra was recently appointed to the Therapies Scientific Committee of the International Rare Disease Research Consortium (IRDiRC). “With my nomination and involvement [...]

Drug shortages and drug repurposing are hot topics in the rare disease community as highlighted by Endo-ERN ePAG Joahn de Graaf at the Endo-ERN symposium [...]

Endo-ERN has partnered with Endocrine Connections to support the collaborative research efforts of our members in the network. In the last 18 months that has [...]

To help Endo-ERN members plan more effectively, recurring meetings have been set for some of the MTGs. see our manual HERE NOTE: no file found MTG [...]

The new Rare Barometer survey on newborn screening for rare diseases is now live! It should take no more than 20 minutes to complete and [...]

Two exciting opportunities are available at one of Endo-ERN’s reference centres! Both positions are available at the laboratory of Prof. Luca Persani at Istituto Auxologico [...]

You are kindly invited to participate in a survey exploring testosterone methodology in clinical units and laboratories throughout Europe. Endo-ERN members UZ Leuven and Ghent [...]

Inspiration and innovation were the driving forces behind Dr Dirk Jan Stenvers application to the ERN Exchange Programme. Dr Stenvers, a clinical endocrinologist at Amsterdam [...]

This survey aims to collect information on the status quo on ERNs and Clinical Research. It is developed by ERICA WP4 Clinical Trial Support on [...]