All news items of Aimee Casey

July 2025 The survey is now closed and the research complete.     Walden University in Minneapolis, Minnesota, USA has a new study about the [...]

The new CPMS 2.0 system went live 31 May, 2024. For the next few months Endo-ERN will continue to use the original CPMS, as we [...]

Exciting News! The EJP RD course “Innovative Therapies and Personalized Medicine for Rare Diseases” is officially live! Explore cutting-edge advancements in gene therapy, regenerative medicine, [...]

The aim of the survey is to identify needs and priorities of academic stakeholders involved in clinical trials, integrating them into the work of ACT-EU. [...]

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The Alström Syndrom e.V. invites you to a benefit concert in Landau-Wollmesheim, Germany on Friday, 12 July, at 5.00 pm. Alström syndrome is one of [...]

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Attention Endo-ERN representatives! You are invited to participate in this important two-year project to develop a new ESE position statement: Self-management and support services for [...]

Great news! Endo-ERN ePAG Johan de Graaf has been elected to EURORDIS Board of Directors during the organisation’s annual General Assembly 2024. Wishing you success [...]

Endo-ERN would like to welcome our newest ePAG Esther Bloem.   Esther has been utilising her skills and experience to support and educate patients. A [...]