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  • About
    • About
      European Reference Network on Rare Endocrine Conditions mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe, through facilitating knowledge sharing and facilitating related healthcare en research.
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      According to usual classification of endocrine conditions, specific diagnostic and therapeutic approaches and composition of the required multidisciplenary teams, eight established Main Thematic Groups (MTGs) were defined within Endo-ERN.
    • Overview
    • Adrenal (MTG1)
    • Disorders of Calcium &
      Phosphate Homeostasis (MTG2)
    • Genetic Disorders of Glucose &
      Insulin Homeostasis (MTG3)
    • Genetic Endocrine
      Tumour Syndromes (MTG4)
    • Growth &
      Genetic Obesity Syndromes (MTG5)
    • Pituitary (MTG6)
    • Sex Development &
      Maturation (MTG7)
    • Thyroid (MTG8)
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      Adequate patient representation and coverage of all expertise, and preferably also of the Work-Packages across all member states is top-priority for Endo-ERN. Patients are represented in the Steering Committee to ensure active patient involvement in any strategic decision and action.
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      Endo-ERN activities are defined in five work packages throughout different phases.
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  • Genetic Disorders of Glucose & Insulin Homeostasis (MTG3)
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Patient information materials

Information materials on MTG3:Genetic disorders of Glucose & Insulin Homeostasis

VADEMECUM BENEFICI E AGEVOLAZIONI PER LE PERSONE AFFETTE DA SINDROME DI ALSTRÖM (IT) (, 277 KB)

 

View patient materials of other MTGs

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Endo-ERN is a European Reference Network co-funded by the European Union’s Health Programme.

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