Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
There are a number of Endocrine Society, ESE and ESPE guidelines on specific diseases, however, the number of conditions with a guideline is limited.
We refer to ESPE, ESE and Endocrine Society guidelines and the approach the associated societies have chosen to develop guidelines. ENDO-ERN ‘Glucose & Insulin homeostasis’ aims to describe current best practice on several conditions.
Read Consensus clinical management for Alström syndrome Natascia Tahani, Pietro Maffei, Hélène Dollfus, Richard Paisey, Diana Valverde, Gabriella Milan, Joan C. Han, Francesca Favaretto, Shyam C. Madathil, Charlotte Dawson, Matthew J. Armstrong, Adrian T. Warfield, Selma Düzenli, Clair A. Francomano, Meral Gunay-Aygun, Francesca Dassie, Vincent Marion, Marina Valenti, Kerry Leeson-Beevers, Ann Chivers, Richard Steeds, Timothy Barrett & Tarekegn Geberhiwot (21 September, 2020)
Orphanet Journal of Rare Diseases, Volume 15, Article number: 253 (2020)
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