Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
The Connecting European Facility launched in January 2014 and is a flagship funding programme of the Europe 2020 Strategy in the sectors of transport, energy and telecommunications. It contains a separate call for the transport sector, the energy sector, and the telecom sector.
Endo-ERN successfully applied for the specific eHealth Digital Service infrastructure within the telecom call, which facilitates the connection between members of ERNs by ensuring the adequate and efficient use of the ERN Core Services (Clinical Patient Management System and ERN Collaborative Platform).
This includes activities such as:
Endo-ERN has hired two operational helpdesk employees to ensure the most efficient functionality of the CPMS. Danielle Steenvoorden is employed at the LUMC in Leiden, as the adult clinical expert, and Julia Hoppmann is employed at the UKSH in Lübeck, as the paediatric clinical expert. For any questions regarding the CPMS email info@endo-ern.eu
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