Partners

ESE

The European Society of Endocrinology (ESE) is the voice for endocrinology in Europe.  ESE supports Endo-ERN with registration, tradeshow booth and a slot on the programme at their annual conference European Congress of Endocrinology (ECE).  
 
Endo-ERN is represented on the ESE Rare Disease Committee and the ESE is represented on the    Endo-ERN Advisory Board.  A Memorandum of Understanding exists between Endo-ERN, ESE and ESPE to expand our cooperation in areas of patient care, education and research.  
 

ESPE

The European Society for Paediatric Endocrinology (ESPE) is an international organisation with the aim to improve the clinical care of children and adolescents with endocrine conditions, including diabetes, through research and education.  
 
Endo-ERN enjoys the support of ESPE with the provision of a tradeshow booth and a slot on the programme at their annual general meeting.   
 
Endo-ERN is represented on the Rare Disease Advisory Committee, and ESPE is represented on the Endo-ERN Advisory Board.  A Memorandum of Understanding exists between Endo-ERN, ESE and ESPE to expand our cooperation in areas of patient care, education and research.     
 
 
ERICA

The aim of the European Rare Disease Research Coordination and Support Action consortium (ERICA), in which all 24 European Reference Networks (ERNs) take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity.  

 

EJP RD

The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions from 35 countries to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation.

 
EURORDIS
Rare Diseases Europe is a unique, non-profit allicance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.

 


JARDIN
JARDIN is a Joint Action to support the integration of European Reference Networks (ERNs) in to national health systems.   

 


ERDERA
The European Rare Disease Resarch Alliance (ERDERA) is a partnership that will be organised around the ambition to improve the health and well-being of the 30 million people living with a rare disease in Europe by making Europe a a world leader in RD research and innovation, to support concrete health benefits to rare disease patients to rare disease patients, through better prevention, diagnosis and treatment.  

  • ERDERA is expected to be launched August 1, 2024


 
Information video for patients and healthcare professionals

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