Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions from 35 countries to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation.
Rare Disease research should be improved to overcome fragmentation, leading to efficacious use of data and resources, faster scientific progress and competitiveness, and most importantly to decrease unnecessary hardship and prolonged suffering of RD patients.
The EJP RD has two major objectives:
The ERNs are included in all four pillars of the EJP RD programme. Endo-ERN plays a leading role in the ERN Rare Disease training and support programme (Work Package 17), through development of an online survey that aims to collect information that is needed to optimally feed the development of specific research training programmes for the ERNs. Furthermore we contribute to pillars 2, 3, and 4.
Read more about the European Joint Programme on Rare Diseases
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