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Endo ERN
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Newsletter March 2018

Posted on April 6th, 2018April 6th, 2018
by Endo ERN
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Newsletter March 2018
 

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Endo-ERN Symposium & Stand at ECE2018

Endo-ERN will be actively present at ECE2018! On Tuesday the 22nd of May a special Endo-ERN Symposium will take place from 9:45 until 10:45 and you will be able to find us at our own exhibition stand, together with EuRRECa (The European Registry for Rare Endocrine Conditions), for the whole duration of the congress.

 

read more

 

 
 
 

 

Press release: Rare Diseases day and 1 year anniversary of ERNs

Press release: Rare Diseases day and 1 year anniversary of ERNs  

The European Commission has released a press release looking back on Rare Diseases day and celebrating the 1-year anniversary of ERNs

 

read more

 

 
 
 

 

European Conference on Rare Diseases and Orphan products patient poster session

  European Conference on Rare Diseases and Orphan products patient poster session

Endo-ERN will present a poster at the European Conference on Rare Diseases and Orphan products. The poster will be presented by our European Patient Advocacy Group patient representatives Johan de Graaf, Petra Brügmann, and Diana Vitali.

 

Read more

 

 
 
 

 

ePAG Representative

A new European Patient Advocacy Group Representative has joined the Endo-ERN ePAG! Jo Grey will represent MTG4: Genetic Endocrine Tumour Syndromes and will join ePAG representative Petra Brügmann, adult expert Atilla Patocs, and Paediatric expert Jo Blair to chair MTG4.

 

View full Steering Commitee

National Coordinators

Two new National Coordinators were recently added to our Advisory Board! Nicole Reisch (Adult expert) and Heiko Krude (Paediatric Expert) are the National Coordinators for Germany.

Want to know how to become a National Coordinator yourself? Email us!

 

View full Advisory Board

 

 
 
 

 

Website update

Have you seen the updated website yet? Find the nearest Endo-ERN Reference Center to you now in an easy interactive map!

 

Visit map

 

 
 
 

 

Upcoming events

  • International Congress on Research of Rare and Orphan Diseases
  • March CPMS Webinar Schedule
  • ENDO 2018
  • The Translational Science of Rare Diseases – From Rare to Care III
  • European Conference on Rare Diseases and Orphan Products
  • ECE 2018
  • Steering Committee & Advisory Board Meeting
  • Multidisciplinary workshop for pituitary tumour specialists
  • ESPE 2018
  • ICE 2018

View all events

 

 
 
 
 
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