European Partnership Opens a New Era in Rare Disease Research
The European Rare Diseases Research Alliance (ERDERA) kicks off this September, with an estimated budget of 380 million euros and the aim of
improving the lives of 30 million rare disease patients in Europe and beyond.
- The new partnership, championed by the European Union under Horizon Europe and Members States, is led by the National Institute of Health and
Medical Research – INSERM (France). It integrates over 170 organisations from the public and private sectors to advance prevention, diagnosis and treatment
research in rare diseases. - The European Union is expected to contribute around 150 million euros to this co-funded partnership via Horizon Europe, while the rest of the funding will
come from members states, countries associated to Horizon Europe and in cash and in-kind contributions from public and private partners. - The alliance takes over the co-fund EJPRD to bring under one roof all knowledge, resources and services, boost clinical research and spur innovation
to make Europe a world leader in this field. - ERDERA will hold a launch event on 28 October 2024 to present its roadmap for the next decade.
