INFO: Next steps for ERNs conclusions from Rare Disease Conference October 2023

The European Economic and Social Committee (EESC) organised a memorable conference on Rare Diseases and European Reference Networks (ERNs) under the auspices of the Spanish Presidency of the Council of the EU and in cooperation with the authorities of the Basque Country, on 11 October 2023 in Bilbao. Endo-ERN staff from the project office were in attendance.

The conclusions of the conference are now available on the on the event’s webpage, where you will also find reports, photos, presentations, recordings and press articles.

The hope is that this event will be followed by many more projects where we can again join forces to find European solutions to improve the quality of life for patients and mitigate the impact of rare diseases on daily, family and professional life.

Plans are already underway to continue this project under the Belgian and Hungarian Presidencies. Check out the news on our webpage!