Updated: ESPE Annual Meeting

The 61st Annual European Society for Paediatric Endocrinology (ESPE) will take place 21-23 September in The Hague, Netherlands.

The Endo-ERN project office will attend and host a booth and a symposium.

The Endo-ERN symposium will be held on Friday, 22 September, 9:30 – 11:00. The programme is:

Perspective of Endo-ERN for the next five years

Olaf Hiort, Deputy coordinator Endo-ERN, Paediatric chair, Germany

European medicine shortages: How can we avoid a disaster for patients with rare conditions?

Johan de Graaf, Dutch Pituitary Foundation, the Netherlands

It matters – set up of clinical trials in rare disease

Peter Kühnen, Charité Universitätsmedizin Berlin, Germany

ERNs and clinical trials; the ERICA and Rare Disease Partnership perspective

Alberto Pereira, Coordinator Endo-ERN, Adult chair, the Netherlands

If you are a member attending ESPE please complete our survey if you have not already done so.

Check out the activities of our members if you have a chance! Check out the interactive ESPE programme for more information.

Friday, 22 September

• Poster 453: Multidisciplinary approach in achondroplasia – real world experience after drug approval of vosoritide, Prof. Klaus Mohnike, Germany
• Hypothalamic syndrome in cancer survivors, Hanneke van Santen, Utrecht, The Netherlands (Mississippi Room)
• Central nervous consequences of CAH and other adrenal disorders, Svetlana Lajic, Stockholm, Sweden (Atlantic Room)

Saturday, 23 September

• Arginine-stimulated copeptin is independent of GH secretion status, Gerhard Binder, Tubingen, Germany
• Marco-TSH 1gG complex in a case of Congenital Hypothyroidism (CH), Alessia Ippolito, Italy
• Thyroid function analysis in 48 patients affected by severe combined immunodeficiency caused by adenosine deaminase deficiency, Giulia Tarantola, Italy
• Poster TBD: Transition from Paediatric to Adult Care in Differences of Sex Development (DSD) – Results from the German Network “DSDCare”, Ulla Doehnert, Germany