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About
- About
  European Reference Network on Rare Endocrine Conditions mission is to reduce and ultimately abolish inequalities in care for patients with rare endocrine conditions in Europe, through facilitating knowledge sharing and facilitating related healthcare en research.
- About ERN
- About Endo-ERN
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Specific Expertise
- Specific Expertise
  According to usual classification of endocrine conditions, specific diagnostic and therapeutic approaches and composition of the required multidisciplenary teams, eight established Main Thematic Groups (MTGs) were defined within Endo-ERN.
- Overview
- Adrenal (MTG1)
- Disorders of Calcium &
  Phosphate Homeostasis (MTG2)
- Genetic Disorders of Glucose &
  Insulin Homeostasis (MTG3)
- Genetic Endocrine
  Tumour Syndromes (MTG4)
- Growth &
  Genetic Obesity Syndromes (MTG5)
- Hypothalamic and Pituitary Conditions (MTG6)
- Sex Development &
  Maturation (MTG7)
- Thyroid (MTG8)
Patients
- Patients
  Adequate patient representation and coverage of all expertise, and preferably also of the Work-Packages across all member states is top-priority for Endo-ERN. Patients are represented in the Steering Committee to ensure active patient involvement in any strategic decision and action.
- Introduction
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- Activities
  Endo-ERN activities are defined in five work packages throughout different phases.
- Knowledge Generation
- Research Activities
- Clinical Activities & eHealth
- Clinical Trials
- Endo-ERN Studies
- ERN Exchange Programme
- Guidelines
- Evaluation
- Other Projects
Publications
Evaluation
- Evaluation
  The objective of the European Reference Networks is to ensure accessible diagnosis and treatment for rare diseases. This care should be consistent across the EU/EEA and rare disease type.
- Overview
- Continuous Monitoring Programme
- 5-Year Evaluation
- Patient Resources
- AMEQUIS

Endo-ERN Newsletter April 2021

Posted on May 18th, 2021

The Endo-ERN newsletter is out now!

Read more about eECE, upcoming webinars, ERICA – Kick off meeting and much more.

This entry was posted in General.

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