The Endo-ERN November & December newsletter is out now! Read about the first Endo-ERN Guideline meeting in Leiden, scheduled webinars in 2020 and the Rare Endocrine Registries Workshop in Glasgow.
General
Lecture by Prof. Thomas Danne in January 2020
We are very pleased to invite you for the lecture of Professor Thomas Danne on Wednesday, 15 January 2020 at the LUMC, The Netherlands.
The theme of lecture is Time in range, its use and implication in the treatment of (children with) type 1 diabetes.
The duration will be 1 hour and accreditation has been requested for 1 point. The lecture is open and free for everyone who is interested in this subject.
Click here for the invitation.
EJP RD Internal Call for Proposals 2019 & Joint Transnational Call 2020 (JTC2020)
Two Preliminary Announcements from EJPRD:
The Clinical Trials Methodology Demonstration Projects Call is now open. It aims to show the usability and capability of the innovative statistical methodologies for clinical trials in rare diseases, which have not been demonstrated on existing data for specific rare disease clinical trials yet. For more information about this call, visit the website.
Call for Proposals 2020 of the EJP RD JTC2020 is online! Topic is: Pre-clinical research to develop effective therapies for rare diseases. There will be a two-stage submission procedure for joint applications: pre-proposals and full proposals. The call [...]
Endo-ERN October Newsletter
The Endo-ERN October newsletter is out now! Read about the Endo-ERN webinar Alström Syndrome on 25 November, 5 new Affiliated Partners joined Endo-ERN, upcoming events and much more!
Rare Diseases Symposium: Cross-border research in rare diseases
European cooperation is of great importance in tackling rare diseases. Conducting joint research offers opportunities for care improvement for patients with a rare disease. Cross-border research was the central topic of the annual Rare Diseases Symposium on November 6th in the LUMC
During the symposium, both internal and external attendees were given an update on international developments within the field of rare diseases. Prof. Alberto Pereira gave an introduction on research within the European Reference Networks (ERNs) and the European Joint Programme on Rare Diseases (EJP RD). The EJP RD actions are organized [...]
Newsletter September 2019
Read the September edition of the Endo-ERN newsletter now! The Launch of the call for members to join existing 24 ERNs has opened, Endo-ERN was present at ESPE2019 and much more.
Click here for the newsletter.
Endo-ERN website now available in Polish
We proudly announce that our Endo-ERN website is now available in Polish. This way, we hope to reach more patients, caretakers, medical specialists etc. closely involved in the field of rare endocrine conditions, all over Europe, all over the world.
The first call for new members to join existing 24 ERNs is now open.
The first call for new members to join existing 24 ERNs is now open until 30 November 2019.
For more information how to apply and join Endo-ERN click here
July & August newsletter
The July & August-edition of the Endo-ERN newsletter is out now! The call for new members to join the ERN will launch soon, 11 new Affiliated Partners joined the European Reference Network, information about the upcoming events and much more!
Click here for the newsletter
