All news items of Aimee Casey

EuRREB.eu is the new and improved website for Europe’s rare disease registry for Rare Endocrine and Bone Conditions. On the new site you will find [...]

The European Registries for Rare Endocrine and Bone Conditions (EuRREB) has launched a new initiative: the EuRREB Participating Centre Voucher. This voucher will give financial [...]

Our colleagues in the European Registries for Rare Endocrine and Bone Conditions (EuRREB) are excited to announce that the Langerhans Cell Histiocytosis (LCH) module is [...]

This publication from our EuRREB colleagues, Developing a Standardised Dataset for Natural History Studies in Fibrous Dysplasia/McCune-Albright Syndrome (FD/MAS), is a key milestone in improving [...]

Endo-ERN co-coordinators Alberto Pereira and Olaf Hiort welcomed 143 representatives from 93 reference centres, as well as 13 ePAGs in Copenhagen for the Endo-ERN General [...]

Now open! A facilitation window for the MOOC Diagnosing Rare Diseases: from the Clinic to Research and back is open from Monday, May 12, until [...]

Endo-ERN is delighted to announce another Special Collection with Endocrine Connections! This Special Collection will build on the first volume which celebrated Endo-ERN’s 5th Anniversary [...]

The Patient’s Voice sessions will take place in the Congress Theatre on Sunday and Monday, bringing together patient advocates and clinicians to demonstrate how collaboration [...]

The FIRENDO (Filiere Maladies Rares Endocriniennes) network will award a grant for the period 2025-2027 to fund a collaborative research project between a FIRENDO member [...]

The endorsement of consensus statements, clinical practice guidelines and scientific meetings by Endo-ERN is something that is considered helpful to Endo-ERN members. WP7 would like [...]