All news items of Aimee Casey

Download and print this A4 poster and place in common areas such as coffee docks, meeting rooms, staff offices. When you print either scale the [...]

Endo-ERN invites patients and families to take part in a new survey on transition of care, aimed at better understanding how young people with rare [...]

Applications are now open for the 2026 Data, Ethics and AI training developed by EURORDIS and ERDERA, offering high-quality training for rare disease patient advocates [...]

Call for input from the RealiseD project: What are the factors that impact participant enrolment in clinical trials? Help shape the rare and ultra rare [...]

Endo-ERN is deeply saddened to share the news of the passing of Jette Kristensen, a founding ePAG of Endo-ERN and long-standing board member and former [...]

As the year draws to a close, it is a great moment to look back on a set of clinical recommendations and best-practice guidelines, published [...]

The European Commission has published the first-ever Continuous Monitoring Report for the European Reference Networks (ERNs), covering the 2023–2024 reporting period. This milestone report compiles [...]

The 13th European Conference on Rare Diseases & Orphan Products (ECRD 2026) will take place 3–4 June 2026, in person in Prague and online. Organised [...]

The European Rare Disease Research Alliance (ERDERA) has pre-announced its upcoming 2026 Joint Transnational Call (JTC): Launching on 10 December 2025, this initiative will fund [...]

The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) — the EU’s long-term budget plan.In the current proposal, rare diseases [...]