All news items of Aimee Casey

European Rare Disease Research Alliance (ERDERA) invite you to share your expertise to help determine which factors matter most – from unmet medical needs to [...]

Another significant milestone in ERN history – CPMS 2.0 mobile app now available for download in the Android and Apple stores. This will increase the [...]

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EuRREB.eu is the new and improved website for Europe’s rare disease registry for Rare Endocrine and Bone Conditions. On the new site you will find [...]

The European Registries for Rare Endocrine and Bone Conditions (EuRREB) has launched a new initiative: the EuRREB Participating Centre Voucher. This voucher will give financial [...]

Our colleagues in the European Registries for Rare Endocrine and Bone Conditions (EuRREB) are excited to announce that the Langerhans Cell Histiocytosis (LCH) module is [...]

This publication from our EuRREB colleagues, Developing a Standardised Dataset for Natural History Studies in Fibrous Dysplasia/McCune-Albright Syndrome (FD/MAS), is a key milestone in improving [...]

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Endo-ERN co-coordinators Alberto Pereira and Olaf Hiort welcomed 143 representatives from 93 reference centres, as well as 13 ePAGs in Copenhagen for the Endo-ERN General [...]

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