All news items of Aimee Casey

The European Economic and Social Committee (EESC) organised a memorable conference on Rare Diseases and European Reference Networks (ERNs) under the auspices of the Spanish [...]

Exciting opportunities are available at one of Endo-ERN’s reference centres! Several PhD postions are available at the University of Lubeck’s Collaborative Research Center (CRC) 1665. [...]

The Continuous Monitoring exercise for Endo-ERN HCPs (Full Member and Affiliated Partners) for 2023 data will run from January 1- February 29, 2024. You should’ve [...]

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As we come to the end of 2023, we want to reminder all members that a minimum of 1 patient virtual consultation should be held [...]

Endo-ERN ePAG Diana Kwast-Hoekstra was recently appointed to the Therapies Scientific Committee of the International Rare Disease Research Consortium (IRDiRC). “With my nomination and involvement [...]

Drug shortages and drug repurposing are hot topics in the rare disease community as highlighted by Endo-ERN ePAG Joahn de Graaf at the Endo-ERN symposium [...]

Endo-ERN has partnered with Endocrine Connections to support the collaborative research efforts of our members in the network. In the last 18 months that has [...]