All news items of Aimee Casey

Endo-ERN is delighted to announce our partnership with The World Orphan Drug Congress Europe. This event is the largest and most established orphan drug & [...]

Recently the Alström community came together to learn from one another and share their stories. This year’s event was bigger than ever before with families [...]

The Umberto I Polyclinic is at the forefront in the management of Rare Diseases, having established the Interdepartmental Center for Rare Diseases (CIMR), which coordinates [...]

Endo-ERN ePAG Johan de Graaf continues to raise awareness of rare disease with his data-based storytelling. He was recently invited to join the faculty of [...]

Endo-ERN ePAGs are involved in all aspects of the work of Endo-ERN. In addition they are very engaged in their own organizations and local community [...]

Jette Kristensen, President of Addison Foreningen Danmark (Danish Addison Patient Association) and Endo-ERN ePAG was kind enough to share this example of European cooperation, which [...]

Have you registered for the Endo-ERN General Assembly? This event will take place 23-24 April in Milan, Italy at the Radisson Blue Hotel. The deadline [...]

The European Economic and Social Committee (EESC) organised a memorable conference on Rare Diseases and European Reference Networks (ERNs) under the auspices of the Spanish [...]

Exciting opportunities are available at one of Endo-ERN’s reference centres! Several PhD postions are available at the University of Lubeck’s Collaborative Research Center (CRC) 1665. [...]

The Continuous Monitoring exercise for Endo-ERN HCPs (Full Member and Affiliated Partners) for 2023 data will run from January 1- February 29, 2024. You should’ve [...]