All news items of Aimee Casey

The 13th European Conference on Rare Diseases & Orphan Products (ECRD 2026) will take place 3–4 June 2026, in person in Prague and online. Organised [...]

The European Rare Disease Research Alliance (ERDERA) has pre-announced its upcoming 2026 Joint Transnational Call (JTC): Launching on 10 December 2025, this initiative will fund [...]

The European Commission has opened a consultation on the draft Multiannual Financial Framework (MFF) — the EU’s long-term budget plan.In the current proposal, rare diseases [...]

The European Commission has published its latest Cross-Border Healthcare Trend Report (2025), revealing steady growth in the number of EU citizens accessing medical care outside [...]

On 9 October 2025, Endo-ERN ePAG Lexi Breen presented a poster titled “Understanding Barriers Faced by Gender Diverse People in Accessing Higher Education” at the [...]

The European Rare Diseases Research Alliance (ERDERA) has a call for the Networking Support Scheme (NSS). The deadline for this round of funding is open [...]

We are pleased to share the latest publication from the European Registries for Rare Endocrine and Bone Conditions (EuRREB):The Gender Incongruence module in EuRREB – [...]

The Rare Barometer programme gathers real experiences from people living with rare diseases across Europe, helping to turn those experiences into concrete data that can [...]

The latest episode of the ERNs on Air bonus podcast series shines a spotlight on a patient-led initiative addressing inequities in endocrine medicine provision across [...]

It is with great sadness that we share the news of the passing of Prof. Juliane Léger on 27 September 2025, at the age of [...]