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    Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions

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    • MTG1Adrenal
    • MTG2Disorders of Calcium & Phosphate Homeostasis
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    • MTG5Growth & Genetic Obesity Syndromes
    • MTG6Hypothalamic and Pituitary Conditions
    • MTG7Sex Development & Maturation
    • MTG8Thyroid
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Endo ERN
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/ Publications Overview / Publications Database

Endo-ERN Publications Database

RDD IssuesBack to Publications Overview

Filter list of publications

890 publication(s) found matching the search criteria

Streptozocin/5-fluorouracil chemotherapy of pancreatic neuroendocrine tumours in the era of targeted therapy


Author(s): Lahner H, Mathew A, Klocker AL, Unger N, Theysohn J, Rekowski J, Jöckel K, Theurer S, Schmid KW, Herrmann K, Führer D
Affiliated Institution / ERN: University Hospital Essen ;
Condition / Disease: Pancreatic neuroendocrine tumour
Publication: Endocrine v75.1 p293-302 Year: 2022 ORPHAcode / other: ORPHA97253
DOI: 10.1007/s12020-021-02859-y Keywords: 5-fluorouracil,Objective response,Pancreatic neuroendocrine tumor,Streptozocin,Survival
MTG4

Growth Hormone Receptor (GHR) 6Ω Pseudoexon Activation: A Novel Cause of Severe Growth Hormone Insensitivity


Author(s): Cottrell E, Maharaj A, Williams J, Chatterjee S, Cirillo G, Miraglia del Giudice E, Festa A, Palumbo S, Capalbo D, Salerno M, Pignata C, Savage MO, Schilbach K, Bidlingmaier M, Hwa V, Metherell LA, Grandone A, Storr HL
Affiliated Institution / ERN: AOU University of Campania "Luigi Vanvitelli", Naples ; AOU Federico II - Naples ; Klinikum der Universität München ;
Condition / Disease:
Publication: The Journal of Clinical Endocrinology & Metabolism v107.1 pe401-e416 Year: 2022 ORPHAcode / other:
DOI: 10.1210/clinem/dgab550 Keywords: GHR 6Ω pseudoexon; growth hormone insensitivity; severe primary IGF-1 deficiency; short stature
MTG5

State of the art and future directions in the systemic treatment of medullary thyroid cancer


Author(s): Jager EC, Broekman KE, Kruijff S, Links TP
Affiliated Institution / ERN: University Medical Center Groningen ;
Condition / Disease: Medullary thyroid carcinoma
Publication: Current Opinion in Oncology v34.1 p1-8 Year: 2022 ORPHAcode / other: ORPHA1332
DOI: 10.1097/CCO.0000000000000798 Keywords:
MTG8

Dutch founder SDHB exon 3 deletion in patients with pheochromocytoma-paraganglioma in South Africa


Author(s): Gordon DM, Beckers P, Castermans E, Neggers SJCMM, Rostomyan L, Bours V, Petrossians P, Dideberg V, Beckers A, Daly AF
Affiliated Institution / ERN: Erasmus MC: University Medical Center Rotterdam ; University Hospital Liège ;
Condition / Disease: Pheochromocytoma-paraganglioma
Publication: Endocrine Connections v11.1 Year: 2022 ORPHAcode / other: ORPHA573163
DOI: 10.1530/EC-21-0560 Keywords: Dutch,Netherlands,SDHB,South Africa,founder mutation,paraganglioma,pheochromocytoma
MTG1 MTG4

The Influence of DXA Hardware, Software, Reference Population and Software Analysis Settings on the Bone Mineral Density and T-Score Relationship


Author(s): Lundstam K, Godang K, Pretorius M, Markwardt P, Hellström M, Bollerslev J, Heck A
Affiliated Institution / ERN:
Condition / Disease:
Publication: Journal of Clinical Densitometry v25.1 p24-33 Year: 2022 ORPHAcode / other:
DOI: 10.1016/j.jocd.2021.07.002 Keywords: BMD,hardware,reference population,settings,software,t-score

Production of 11-Oxygenated Androgens by Testicular Adrenal Rest Tumors


Author(s): Schröder MAM, Turcu AF, O’Day P, van Herwaarden AE, Span PN, Auchus RJ, Sweep FCGJ, Claahsen-van der Grinten HL
Affiliated Institution / ERN: Radboud University Medical Centre Nijmegen ;
Condition / Disease: Congenital Adrenal Hyperplasia
Publication: The Journal of Clinical Endocrinology & Metabolism v107.1 pe272-e280 Year: 2022 ORPHAcode / other: ORPHA418
DOI: 10.1210/clinem/dgab598 Keywords: CAH,TART,adrenal,spermatic vein,steroidogenesis,testis
MTG7

Pasireotide treatment for severe congenital hyperinsulinism due to a homozygous ABCC8 mutation


Author(s): Mooij CF, Tacke CE, van Albada ME, Barthlen W, Bikker H, Mohnike K, Oomen MW, van Trotsenburg AP, Zwaveling-Soonawala N
Affiliated Institution / ERN: Amsterdam UMC ; University Medical Center Groningen ; Universitätsklinikum Magdeburg ;
Condition / Disease: Congenital isolated hyperinsulinism
Publication: Annals of Pediatric Endocrinology & Metabolism v26.4 p278-283 Year: 2021 ORPHAcode / other: ORPHA657
DOI: 10.6065/apem.2142010.005 Keywords: Congenital hyperinsulinism,Pancreatectomy,Pasireotide,Somatostatin analogue
MTG3

Multiple hormonal and metabolic deficiency syndrome predicts outcome in heart failure: the T.O.S.CA. Registry


Author(s): Cittadini A, Salzano A, Iacoviello M, Triggiani V, Rengo G, Cacciatore F, Maiello C, Limongelli G, Masarone D, Perticone F, Cimellaro A, Perrone Filardi P, Paolillo S, Mancini A, Volterrani M, Vriz O, Castello R, Passantino A, Campo M, Modesti PA, De Giorgi A, Monte IP, Puzzo A, Ballotta A, D’Assante R, Arcopinto M, Gargiulo P, Sciacqua A, Bruzzese D, Colao A, Napoli R, Suzuki T, Eagle KA, Ventura HO, Marra AM, Bossone E
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Hormone deficiency
Publication: European Journal of Preventive Cardiology v28.15 p1691-1700 Year: 2021 ORPHAcode / other: 5B3Z
DOI: 10.1093/eurjpc/zwab020 Keywords: Anabolic deficiency,Heart failure,Hormones,Multiple hormonal and metabolic deficiency syndrome,Prognosis,TOSCA
MTG1 MTG2 MTG3 MTG4 MTG5 MTG6 MTG7 MTG8

Case Report: Off-Label Liraglutide Use in Children With Wolfram Syndrome Type 1: Extensive Characterization of Four Patients


Author(s): Frontino G, Raouf T, Canarutto D, Tirelli E, Di Tonno R, Rigamonti A, Cascavilla ML, Baldoli C, Scotti R, Leocani L, Huang S, Meschi F, Barera G, Broccoli V, Rossi G, Torchio S, Chimienti R, Bonfanti R, Piemonti L
Affiliated Institution / ERN: San Raffaele hospital - Milan ;
Condition / Disease: Wolfram syndrome
Publication: Frontiers in Pediatrics v9 Year: 2021 ORPHAcode / other: ORPHA3463
DOI: 10.3389/fped.2021.755365 Keywords: GLP1 receptor agonists,Wolfram syndrome,Wolfram syndrome 1 (WFS1),liraglutide,monogenic diabetes,neurodegeneration
MTG6

Guided Growth in Leg Length Discrepancy in Beckwith-Wiedemann Syndrome: A Consecutive Case Series


Author(s): De Pellegrin M, Brogioni L, Laskow G, Barera G, Pajno R, Osimani S, Russo S, Marcucci L
Affiliated Institution / ERN: San Raffaele hospital - Milan ; IRCCS Auxologico Italian Institute - Milan ;
Condition / Disease: Beckwith-Wiedemann Syndrome
Publication: Children v8.12 p1152 Year: 2021 ORPHAcode / other: ORPHA116
DOI: 10.3390/children8121152 Keywords: BWS,LLD,lateralized overgrowth,leg length discrepancy,temporary epiphysiodesis
MTG5

How to design a registry for undiagnosed patients in the framework of rare disease diagnosis: suggestions on software, data set and coding system


Author(s): Berger A, Rustemeier A, Göbel J, Kadioglu D, Britz V, Schubert K, Mohnike K, Storf H, Wagner TOF
Affiliated Institution / ERN: São João University Hospital(CHUSJ) ;
Condition / Disease: Rare endocrine conditions
Publication: Orphanet Journal of Rare Diseases v16.1 Year: 2021 ORPHAcode / other: ORPHA97978
DOI: 10.1186/s13023-021-01831-3 Keywords: HPO,Rare diseases,Registry,Undiagnosed patients
MTG1 MTG2 MTG3 MTG4 MTG5 MTG6 MTG7 MTG8

Technical aspects of paediatric robotic pancreatic enucleation based on a case of an insulinoma


Author(s): Schulte am Esch J, Krüger M, Barthlen W, Förster C, Mohnike K, Empting S, Benhidjeb T, Vossschulte H
Affiliated Institution / ERN: Universitätsklinikum Magdeburg ;
Condition / Disease: Insulinoma
Publication: The International Journal of Medical Robotics and Computer Assisted Surgery v17.6 Year: 2021 ORPHAcode / other: ORPHA97279
DOI: 10.1002/rcs.2317 Keywords: abdominal,augmented reality,computer-assisted surgery,digestive system,gastrointestinal,general surgery,hepato-pancreato-biliary,imaged guided surgery,insulinoma,minimal invasive surgery,paediatric surgery,pancreas,pancreatectomy,pancreatic,preoperative planning,resection,robotic visceral surgery,ultrasound
MTG4

Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions


Author(s): Javaid MK, Mordenti M, Boarini M, Sangiorgi L, Westerheim I, Alves I, Skarberg RT, Appelman-Dijkstra NM, Grasemann C
Affiliated Institution / ERN: Leiden University Medical Center ; Katholisches Klinikum Bochum ;
Condition / Disease: Rare mineral conditions
Publication: Orphanet Journal of Rare Diseases v16.1 Year: 2021 ORPHAcode / other: ORPHA68415
DOI: 10.1186/s13023-021-02069-9 Keywords: Natural History,Osteogenesis imperfecta,Rare bone and mineral conditions,Rare disease registries,Survey
MTG2

Hypoparathyroidism and pseudohypoparathyroidism in pregnancy: an Italian retrospective observational study


Author(s): Marcucci G, Altieri P, Benvenga S, Bondanelli M, Camozzi V, Cetani F, Cianferotti L, Duradoni M, Fossi C, degli Uberti E, Famà F, Mantovani G, Marcocci C, Masi L, Pagotto U, Palermo A, Parri S, Ruggeri RM, Zatelli MC, Brandi ML
Affiliated Institution / ERN: University Hospital Florence ; AOU polyclinic "G.Martino" of Messina ; AOU - Ferrara ; University Hospital of Padova ; AOU Pisan ; Foundation IRCCS CA'Granda Ospedale Maggiore polyclinic - Milan ;
Condition / Disease: Hypoparathyroidism and pseudohypoparathyroidism
Publication: Orphanet Journal of Rare Diseases v16.1 Year: 2021 ORPHAcode / other: ORPHA181405, ORPHA97593
DOI: 10.1186/s13023-021-02053-3 Keywords: Breastfeeding,Calcitriol,Calcium carbonate,Hypocalcemia,Hypoparathyroidism,Miscarriages,Pregnancy,Preterm birth,Pseudohypoparathyroidism,Treatment
MTG2

Loss of KDM1A in GIP-dependent primary bilateral macronodular adrenal hyperplasia with Cushing’s syndrome: a multicentre, retrospective, cohort study


Author(s): Chasseloup F, Bourdeau I, Tabarin A, Regazzo D, Dumontet C, Ladurelle N, Tosca L, Amazit L, Proust A, Scharfmann R, Mignot T, Fiore F, Tsagarakis S, Vassiliadi D, Maiter D, Young J, Lecoq A, Deméocq V, Salenave S, Lefebvre H, Cloix L, Emy P, Dessailloud R, Vezzosi D, Scaroni C, Barbot M, de Herder W, Pattou F, Tétreault M, Corbeil G, Dupeux M, Lambert B, Tachdjian G, Guiochon-Mantel A, Beau I, Chanson P, Viengchareun S, Lacroix A, Bouligand J, Kamenický P
Affiliated Institution / ERN: Hôpital Bicêtre ; Evangelismos General Hospital ; Assistance Publique-Hôpitaux de Paris, Hôpital Cochin ; Hospices Civils de Lyon ; University Hospital of Padova ; Erasmus MC: University Medical Center Rotterdam ; CHU de Toulouse ; University Hospitals Saint-Luc ;
Condition / Disease: Cushing syndrome due to bilateral macronodular adrenocortical disease
Publication: The Lancet Diabetes & Endocrinology v9.12 p813-824 Year: 2021 ORPHAcode / other: ORPHA189427
DOI: 10.1016/S2213-8587(21)00236-9 Keywords:
MTG1

Ultrasound criteria (EU-TIRADS) to identify thyroid nodule malignancy risk in adolescents. Correlation with cyto-histological findings


Author(s): Yeste Fernández D, Vega Amenabar E, Coma Muñoz A, Arciniegas Vallejo L, Clemente León M, Planes-Conangla M, Iglesias Felip C, Sábado Álvarez C, Guillén Burrieza G, Campos-Martorell A
Affiliated Institution / ERN: Hospital Universitari Vall d’Hebron ;
Condition / Disease: Follicular thyroid carcinoma
Publication: Endocrinología, Diabetes y Nutrición (English ed.) v68.10 p728-734 Year: 2021 ORPHAcode / other: ORPHA146
DOI: 10.1016/j.endien.2020.11.006 Keywords: Adolescencia,Adolescent,Bethesda classification,Citología,Clasificación Bethesda,Cytology,Cáncer de tiroides,EU-TIRADS,Ecografía de tiroides,FNAB,Nódulos tiroideos,PAAF,Thyroid cancer,Thyroid nodule,Thyroid ultrasound
MTG8

Paradoxical low severity of COVID-19 in Prader-Willi syndrome: data from a French survey on 647 patients


Author(s): Coupaye M, Laurier V, Benvegnu G, Poitou C, Faucher P, Mosbah H, Diene G, Pinto G, Briceño LG, Merrien C, Toyos AC, Montastier E, Tauber M, Mourre F
Affiliated Institution / ERN: CHU de Toulouse ; Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpétrière ;
Condition / Disease: Prader-Willi syndrome
Publication: Orphanet Journal of Rare Diseases v16.1 Year: 2021 ORPHAcode / other: ORPHA739
DOI: 10.1186/s13023-021-01949-4 Keywords: COVID-19,Obesity,Oxytocin,Prader-Willi syndrome,SARS-CoV-2
MTG5

Use of Salivary Iodine Concentrations to Estimate the Iodine Status of Adults in Clinical Practice


Author(s): Dekker BL, Touw DJ, van der Horst-Schrivers ANA, Vos MJ, Links TP, Dijck-Brouwer DJ, Muller Kobold AC
Affiliated Institution / ERN: University Medical Center Groningen ; Maastricht University Medical Center+ ;
Condition / Disease: Iodine status
Publication: The Journal of Nutrition v151.12 p3671-3677 Year: 2021 ORPHAcode / other:
DOI: 10.1093/jn/nxab303 Keywords: iodine intake,salivary iodine,salivary protein,salivary urea,urinary iodine

Age at diagnosis in patients with chronic congenital endocrine conditions: a regional cohort study from a reference center for rare diseases


Author(s): Kallali W, Messiaen C, Saïdi R, Lessim S, Viaud M, Dulon J, Nedelcu M, Samara D, Houang M, Donadille B, Courtillot C, de Filippo G, Carel J, Christin-Maitre S, Touraine P, Netchine I, Polak M, Léger J
Affiliated Institution / ERN: Hospital Universitario Cruces ;
Condition / Disease: Congenital endocrine conditions
Publication: Orphanet Journal of Rare Diseases v16.1 Year: 2021 ORPHAcode / other: ORPHA631, ORPHA238666, ORPHA2614, ORPHA562, ORPHA99429, ORPHA1772
DOI: 10.1186/s13023-021-02099-3 Keywords: Cohort,Congenital endocrine disease,Diagnosis,Female,Male
MTG6 MTG7

Paediatric Cushing’s disease: Epidemiology, pathogenesis, clinical management and outcome


Author(s): Ferrigno R, Hasenmajer V, Caiulo S, Minnetti M, Mazzotta P, Storr HL, Isidori AM, Grossman AB, De Martino MC, Savage MO
Affiliated Institution / ERN: AOU Federico II - Naples ;
Condition / Disease: Cushing disease
Publication: Reviews in Endocrine and Metabolic Disorders v22.4 p817-835 Year: 2021 ORPHAcode / other: ORPHA96253
DOI: 10.1007/s11154-021-09626-4 Keywords: Cortisol,Cushing’s,Hypercortisolism,Paediatric,Pituitary
MTG6

Oral octreotide capsules for the treatment of acromegaly: comparison of 2 phase 3 trial results


Author(s): Labadzhyan A, Nachtigall LB, Fleseriu M, Gordon MB, Molitch M, Kennedy L, Samson SL, Greenman Y, Biermasz N, Bolanowski M, Haviv A, Ludlam W, Patou G, Strasburger CJ
Affiliated Institution / ERN: Leiden University Medical Center ; Charité Universitätsmedizin Berlin ;
Condition / Disease: Acromegaly
Publication: Pituitary v24.6 p943-953 Year: 2021 ORPHAcode / other: ORPHA963
DOI: 10.1007/s11102-021-01163-2 Keywords: Acromegaly,Growth hormone,IGF-I,Oral octreotide,Somatostatin analogs,Somatostatin receptor ligands
MTG6

Long-term male fertility after treatment with radioactive iodine for differentiated thyroid carcinoma


Author(s): Nies M, Arts EGJM, van Velsen EFS, Burgerhof JGM, Muller Kobold AC, Corssmit EPM, Netea-Maier RT, Peeters RP, van der Horst-Schrivers ANA, Cantineau AEP, Links TP
Affiliated Institution / ERN: University Hospital Essen ; Universitätsklinikum Schleswig-Holstein ; Universitätsklinikum Tübingen ; Sestre milosrdnice University Hospital Center ; Ulm University Medical Center ;
Condition / Disease: Differentiated Thyroid Carcinoma
Publication: European Journal of Endocrinology v185.6 p775-782 Year: 2021 ORPHAcode / other: ORPHA142
DOI: 10.1530/EJE-21-0315 Keywords:
MTG8

The first European consensus on principles of management for achondroplasia


Author(s): Cormier-Daire V, AlSayed M, Ben-Omran T, de Sousa SB, Boero S, Fredwall SO, Guillen-Navarro E, Irving M, Lampe C, Maghnie M, Mortier G, Peijin Z, Mohnike K
Affiliated Institution / ERN: IRCCS Istituto Giannina Gaslini, Genova ; UZ Antwerpen ; Universitätsklinikum Magdeburg ; ERN BOND ;
Condition / Disease: Achondroplasia
Publication: Orphanet Journal of Rare Diseases v16.1 Year: 2021 ORPHAcode / other: ORPHA15
DOI: 10.1186/s13023-021-01971-6 Keywords: Achondroplasia,European Achondroplasia Forum,Guiding principles

Novel presentation of the c.1856A > G (p.Asp619Gly) TSHR gene-activating variant: relapsing hyperthyroidism in three subsequent generations manifesting in early childhood and an in vitro functional study


Author(s): Bezdicka M, Kleiblova P, Soucek J, Borecka M, El-Lababidi E, Smrz D, Rataj M, Sumnik Z, Malikova J, Soucek O
Affiliated Institution / ERN: University Hospital Motol ; General University Hospital in Prague ;
Condition / Disease: Familial hyperthyroidism due to mutations in TSH receptor
Publication: Hormones v20.4 p803-812 Year: 2021 ORPHAcode / other: ORPHA424
DOI: 10.1007/s42000-021-00299-x Keywords: Activating TSHR pathogenic variant,Case report,Familial non-autoimmune hyperthyroidism,Functional study,Radioiodine ablative treatment,Repeated thyroid surgery
MTG8

A recessive variant in TFAM causes mtDNA depletion associated with primary ovarian insufficiency, seizures, intellectual disability and hearing loss


Author(s): Ullah F, Rauf W, Khan K, Khan S, Bell KM, de Oliveira VC, Tariq M, Bakhshalizadeh S, Touraine P, Katsanis N, Sinclair A, He S, Tucker EJ, Baig SM, Davis EE
Affiliated Institution / ERN: Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpétrière ;
Condition / Disease: Rare disorder with hypergonadotropic hypogonadism
Publication: Human Genetics v140.12 p1733-1751 Year: 2021 ORPHAcode / other: ORPHA181441
DOI: 10.1007/s00439-021-02380-2 Keywords:
MTG7

Sunitinib-Induced Hypothyroidism and Survival in Pancreatic Neuroendocrine Tumors


Author(s): Mathew A, Führer D, Lahner H
Affiliated Institution / ERN: ERN BOND ; University Hospital Essen ;
Condition / Disease: Neuroendocrine tumours
Publication: Hormone and Metabolic Research v53.12 p794-800 Year: 2021 ORPHAcode / other:
DOI: 10.1055/a-1658-3077 Keywords:
MTG8

Safe and persistent growth-promoting effects of vosoritide in children with achondroplasia: 2-year results from an open-label, phase 3 extension study


Author(s): Savarirayan R, Tofts L, Irving M, Wilcox WR, Bacino CA, Hoover-Fong J, Font RU, Harmatz P, Rutsch F, Bober MB, Polgreen LE, Ginebreda I, Mohnike K, Charrow J, Hoernschemeyer D, Ozono K, Alanay Y, Arundel P, Kotani Y, Yasui N, White KK, Saal HM, Leiva-Gea A, Luna-González F, Mochizuki H, Basel D, Porco DM, Jayaram K, Fisheleva E, Huntsman-Labed A, Day JR
Affiliated Institution / ERN: ERN BOND ;
Condition / Disease: Achondroplasia
Publication: Genetics in Medicine v23.12 p2443-2447 Year: 2021 ORPHAcode / other: ORPHA15
DOI: 10.1038/s41436-021-01287-7 Keywords:

Sex Bias in Differentiated Thyroid Cancer


Author(s): Suteau V, Munier M, Briet C, Rodien P
Affiliated Institution / ERN: CHU d'Angers ;
Condition / Disease: Follicular thyroid carcinoma
Publication: International Journal of Molecular Sciences v22.23 p12992 Year: 2021 ORPHAcode / other: ORPHA146
DOI: 10.3390/ijms222312992 Keywords: estrogens,oncogenes,reactive oxygen species (ROS),sex bias,thyroid cancer
MTG8

Two Cases of Leigh Syndrome in One Family: Diagnostic Challenges and Clinical Management Experience in Latvia


Author(s): Katkevica A, Kreile M, Grinfelde I, Taurina G, Micule I, Dzivite-Krisane I, Smite-Laguna A, Malniece I
Affiliated Institution / ERN:
Condition / Disease:
Publication: Case Reports in Medicine v2021 p1-5 Year: 2021 ORPHAcode / other:
DOI: 10.1155/2021/5266820 Keywords:

The Quality Evaluation of Rare Disease Registries—An Assessment of the Essential Features of a Disease Registry


Author(s): Ali SR, Bryce J, Kodra Y, Taruscio D, Persani L, Ahmed SF
Affiliated Institution / ERN: IRCCS Auxologico Italian Institute - Milan ; Leiden University Medical Center ;
Condition / Disease: Rare disease registries
Publication: International Journal of Environmental Research and Public Health v18.22 p11968 Year: 2021 ORPHAcode / other: ORPHA97978
DOI: 10.3390/ijerph182211968 Keywords: databases,quality,rare conditions,rare diseases,registries
MTG1 MTG2 MTG3 MTG4 MTG5 MTG6 MTG7 MTG8
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E-services

Endo-ERN has a contact form, which activates your email software and allows you to send a comment or question to a general email address. When you send such a message, your personal data is collected only to the extent necessary to reply. If the team responsible for the mailbox is unable to answer your question, or your questions has regards to another party, it might forward your email to another service.

If you have any questions about the processing of your email and related personal data, do not hesitate to include them in your message.

The collected personal data and all information related to the above mentioned consultation is stored on the email server of the Endo-ERN Coordinating office and potentially those who have been concerned in the correspondence in order to respond to your comment.

Newsletter Tracking

The Endo-ERN newsletter makes use of tracking in order to be able to conduct a statistical analysis of the success or failure of online marketing campaigns. Endo-ERN may see if an email containing a newsletter was opened by a user, when it was opened, and which links were opened. 
The data collected through this tracking is generated and stored by Endo-ERN and is not shared with third parties, but may be used to adapt future content of newsletters in order to better meet the interests of our subscribers.

Contact details

For any questions regarding our privacy policy, please contact the Endo-ERN coordinating office.

You have the right to be forgotten and removed completely from the Endo-ERN contact database. To request this, please contact the Endo-ERN coordinating office.

Endo-ERN Coordinating Center, Meibergdreef 9, 1105 AZ  AMSTERDAM. The Netherlands

 info@endo-ern.eu
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