Current clinical practice for thromboprophylaxis management in patients with Cushing’s syndrome across reference centers of the European Reference Network on Rare Endocrine Conditions (Endo-ERN)

Cushing’s syndrome (CS) is associated with an hypercoagulable state and an increased risk of venous thromboembolism (VTE). Evidence-based guidelines on thromboprophylaxis strategies in patients with CS are currently lacking. We aimed to map the current clinical practice for thromboprophylaxis management in patients with CS across reference centers (RCs) of the European Reference Network on Rare Endocrine Conditions (Endo-ERN), which are endorsed specifically for the diagnosis and treatment of CS. Using the EU survey tool, a primary screening survey, and subsequently a secondary, more in-depth survey were developed.

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TitleCurrent clinical practice for thromboprophylaxis management in patients with Cushing’s syndrome across reference centers of the European Reference Network on Rare Endocrine Conditions (Endo-ERN)
DateMay 3rd, 2022
Issue nameOrphanet Journal of Rare Diseases
Issue number178. doi: 10.1186/s13023-022-02320-x
AuthorsF M van Haalen, M Kaya, I C M Pelsma, O M Dekkers, N R Biermasz, S C Cannegieter, M V Huisman, B J M van Vlijmen, R A Feelders, F A Klok, A M Pereira & Endo-ERN Cushing and Thrombosis study group
MTGsMTG6
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