The network of experts created by Endo-ERN will actively participate in creating a better global scientific research- and development ecosystem in the field of endocrinology.
To do this Endo-ERN will help develop guidelines, prioritize which unmet research needs take precedence in the field of rare endocrinology, and form a bridge between paediatric and adult endocrinology research.
One of our main goals is to implement the patient voice at the core of research needs and the forming of guidelines.
European Registries for Rare Endocrine Conditions (EuRRECa) is aimed at maximising the opportunity to participate and use high quality, patient-centred registries for rare endocrine conditions
European Registry for Rare Bone and Mineral Conditions (EuRR-Bone) is aimed at creating a high-quality, patient-centered registry for rare bone and mineral conditions in collaboration with EuRRECa.