Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
The network of experts created by Endo-ERN will actively participate in creating a better global scientific research- and development ecosystem in the field of endocrinology.
To do this Endo-ERN will help develop guidelines, prioritize which unmet research needs take precedence in the field of rare endocrinology, and form a bridge between paediatric and adult endocrinology research.
One of our main goals is to implement the patient voice at the core of research needs and the forming of guidelines.
For more information on this, contact our Work Package leaders
European Registries for Rare Endocrine Conditions (EuRRECa) is aimed at maximising the opportunity to participate and use high quality, patient-centred registries for rare endocrine conditions
European Registry for Rare Bone and Mineral Conditions (EuRR-Bone) is aimed at creating a high-quality, patient-centered registry for rare bone and mineral conditions in collaboration with EuRRECa.
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