Endo-ERN is focused on 8 main thematic groups (MTGs) which cover rare and/or complex endocrine conditions
Endo-ERN is a network of 100+ Reference Centres (RCs) in 28 EU member states that offers access to clinical experts for patients with rare endocrine conditions.
Endo-ERN is the network for rare endocrine conditions providing healthcare professionals with access to a variety of resources to support patient care.
If you work at a member institution this page will help with your Endo-ERN contributions.
Access to rare disease expertise without the need to travel is a core ERN objective. Our ePAGs contribute to all Endo-ERN activities.
Informed consent must always be obtained in order to be allowed to enrol your patient in the CPMS. Consent for care is obligated, consent for ERN databases and registries, and consent to be contacted for research is optional.
You can download the consent forms here and within the CPMS:
For the most updated version of the form please always login to the CPMS.
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