Endo-ERN will have participate in several aspects of the at the Joint Congress of European Society for Paediatric Endocrinology (ESPE) and the European Society of Endocrinology (ESE) thanks to our partnership with these organisations.

• Endo-ERN will host a booth 44&45 with Endo-ERN ePAGs and our colleagues from EuRREB – stop by and find out more about Endo-ERN’s activities. Our colleagues also prepared posters that are worth a view:
  • Creating Patient Journeys within Endo-ERN
  • European patient advocacy group (Endo-ERN)
  • The European Registries for Rare Endocrine and Bone Conditions (EuRREB): Collecting Core Data Elements and Clinician and Patient-Reported Outcomes
  • The European Registries for Rare Endocrine and Bone Conditions (EuRREB): Results from the Platform for e-Reporting of Rare Conditions (e-REC)
• An informative symposium will take place on Tuesday, 13 May, 10:30-12:00 in Hall A.
  • Session chairs: Alberto Pereira & Olaf Hiort, Endo-ERN co-coordinators ​​10:30-10:50 Endo-ERN: a key player in the triad with the European

    Endocrine Societies

    Alberto Pereira, the Netherlands & Olaf Hiort​, Germany
    ​

    10:50-11:10 Transversal Working Group on Transition of Care​

    Andrea Isidori, Italy & Ulla Doehnert, Germany
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    11:10-11:35 Genital Surgery in Disorders of Sex Development​

    Hedi Claahsen – van der Grinten, the Netherlands
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    11:35-12:00 Challenges associated with late diagnosis of intersex variations and its links to gender identity

    Lexi Breen, United Kingdom

• Endo-ERN ePAGs and clinicians are involved in the Patient’s Voice sessions at the Congress Theatre on Sunday & Monday
  • Sunday 15:50-16:20: What’s new in Turner Syndrome (TS) Arlene Smyth (UK), Anne Skakkebaek (Denmark), Caroline Brain (UK), Aneta Gawlik-Starzyk (poland), and Claus H Gravholt (Denmark)