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General Assembly 2018
On the 22nd of February, 2018, the second Endo-ERN General Assembly took place in Lübeck, Germany.
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Little under one hundred participants gathered in Lübeck for the General Assembly on the 22nd of February. Representatives of the Endo-ERN Reference Center members, Patient Representatives, National Coordinators, representatives of ESE and ESPE, and other specifically interested persons attended. The purpose of this General Assembly was to update all members on Endo-ERN activities and to approve the first year actions and the plans for the second year. Presentations were given on activities within the different Work Packages (WPs) and Main Thematic Groups(MTGs), the European Patient Advocacy Groups representatives (ePAG representative), National Coordinators, the Endo-ERN coordination, and perspectives from the European Society of Endocrinology and the European Society for Paediatric Endocrinology.
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The meeting was opened at 11:00 hrs by our host and paediatric chair, Olaf Hiort, and the CEO for Science in the board of directors of UKSH, Thomas Münter. The morning agenda consisted of an update on the first year of Endo-ERN’s functionality, a presentation on the plans and priorities of the second year, perspectives from the societies and voting on . This year of Endo-ERN mainly focused on mapping the knowledge base and on innovation capacity and quality of care for each of the MTGs.
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New Audit
In view of the continuous quality assurance, the European Commission will periodically re-assess accepted centres by an independent assessment body. If you are an Endo-ERN member, please prepare yourself by having available the documents as mentioned in document 8 ‘self-assessment checklist tool ‘ of the original application. More information on which reference centers will be audited will follow soon.
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Register CPMS & CP
Don’t forget tot register for the Clinical Patient Management System & Collaborative Platform. Acces can be requested via our members page
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Position statement on the UK and ERNs
The Network Coordinators of the 24 European Reference Networks have written a position statement on the future involvement of the United Kingdom within ERNs. In this paper the ERN coordinators highlight the importance of the UK’s continuous involvement in ERNs.
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