We are pleased to share the latest publication from the European Registries for Rare Endocrine and Bone Conditions (EuRREB):
The Gender Incongruence module in EuRREB – European Registries for Rare Endocrine and Bone Conditions: first results, current insights and future directions published in Endocrine Connections.

What the study achieved

The EuRREB team has successfully developed and integrated a dedicated module for Gender Incongruence within existing European health registries.
This new module:

• Standardises data collection across centres

• Enhances comparability and interoperability

• Supports more robust, multicentre research

• Captures key clinical, demographic, and treatment-related variables

Why it matters

Gender incongruence care is a rapidly evolving area in endocrinology, requiring consistent, evidence-based approaches.
By harmonising data, the EuRREB module strengthens the capacity to:

• Monitor treatment pathways and safety

• Conduct long-term outcome and epidemiological studies

• Inform policy and improve care standards for transgender and gender-diverse individuals across Europe

Collaboration and next steps

This milestone was made possible through the collaboration of Endo-ERN partners, registry experts, and participating clinical sites across Europe.
Looking ahead, the goal is for the module to be widely adopted to support international research, shared learning, and health equity in transgender care.

If you are interested in registry design, transgender health research, or collaborating on multicenter endocrine or bone projects get in touch with the EuRREB team.