NEW: HypoNIEWS article about registries

hypofyse-nl

Loren van der Hoeven, MD and PhD candidate at Amsterdam UMC was invited by Endo-ERN ePAG Johan de Graaf of the Dutch Pituitary Foundation to write an article for patients explaining rare disease registries.

This easy-to-understand article was published in the membership magazine of the Dutch Pituitary Foundation and Endo-ERN was allowed to translate to English and share with the network.

Check out the article and please share with patients that might be interested.

This entry was posted in General.