The latest episode of the ERNs on Air bonus podcast series shines a spotlight on a patient-led initiative addressing inequities in endocrine medicine provision across Europe.

In this episode, host Julien Poulain hands over to Nora Lázaro (EURORDIS, ERN & Healthcare Patient Engagement Manager) for a conversation with Johan de Graaf (patient representative and co-chair of the Endo-ERN ePAG) and Emily White (Project Manager, Endo-ERN Coordination Team).

Together, they discuss how data from three Europe-wide surveys has been used to map disparities in access to essential treatments and specialist care for rare endocrine conditions. The findings reveal persistent gaps across countries and highlight the power of collaboration between patients, clinicians, and project managers to drive systemic change.

Recognised as one of the winners of the EURORDIS 2025 Patient Partnership Good Practice Challenge, this project demonstrates the impact of meaningful patient involvement in shaping fairer, more effective healthcare systems.

🎧 Listen to the full episode.