Endo Last General Newsletter – Update Your Preferences

Endo-ERN – Last General Newsletter – Update Your Preferences

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This is the last edition of our general Endo-ERN newsletter. From now on, we’ll share updates in topic-based newsletters: Clinical Practice Information, Virtual Consultations, Rare Disease Research (including registries), and Education & Training.

To make sure you only receive the newsletters most relevant to you, please update your expertise and preferences using the instructions below. Otherwise, you may receive multiple newsletters.

We look forward to keeping you informed about Endo-ERN with the updates that matter most to you.

Enjoy the read!

Endo-ERN team

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UPDATE: Newsletter Preferences

To update your newsletter preferences go to the top of this newsletter and click on Update Profile. You can then adjust your preferred topics to ensure that you receive a newsletter that contains information that you are interested in. This short video shows you how to make the update.

 

APPLY: ERDERA Networking Support Scheme (NSS) funding call

The European Rare Diseases Research Alliance (ERDERA) has a call for the Networking Support Scheme (NSS). The deadline for this round of funding is open until early October. The aim of the NSS is to bring rare disease and the rare cancer community together across borders, disciplines and sectors.

This call will be open until April 2029 with applications being reviewed on a six-monthly basis.

MORE

START: EU Login for CPMS 2.0

CPMS 2.0 now uses EU Login for access, replacing the old SAAS accounts. This makes signing in faster, more secure, and easier to manage. Need help setting up? Watch our short step-by-step video guide.

CPMS 2.0 App now available for download in the Android and Apple stores. This will increase the convenience of CPMS 2.0 use and the app is enhanced with several new features.

 

NEW ePAG: ePAG Marc Büdenbender – Endo-ERN

We are pleased to welcome new ePAG Marc Büdenbender to Endo-ERN and MTG1.

Marc joined the board of Let’s Cure ACC after surviving stage IV adrenocortical carcinoma, driven by a strong desire to support others coping with this very rare and life-threatening disease.

MORE

NEW ePAG: Laura Maag from Surrénales

We are pleased to welcome Laura Maag as a new patient representative for the French association Surrénales. A dedicated member of the organization for over 16 years, Laura brings a wealth of experience and insight into adrenal conditions.

MORE

REGISTER: Upcoming webinars

Endo-ERN experts continue to deliver informative webinars that increases the expertise in the network.

September: ESE Talks webinar…CAH: diagnostic and therapeutic challenges across the lifespan

September: Advances in the diagnosis and management of Congenital Hypogonadotropic Hypogonadism (CHH)

September: Genotype-phenotype correlations in CAH

October: Diagnosis and management of TSH resistance

October: Clinical Practice recommendations for the diagnosis and management of XLH

October: An update on primordial dwarfism conditions

November: ESE Talks…Recent therapeutic perspectives for rare endocrine diseases (multiple examples)

Register now for these upcoming webinars. Remember if you cannot attend live, register anyway and you will receive a recording.

 

WEBINARS

REGISTER: Upcoming Conferences and Training Events

Upcoming events that might be of interest to you or your team:

September: EuRREB Registries Symposium

September: ESE Young Endocrinologists and Scientists (EYES)

October: 4th International Workshop on Klnefelter Syndrome

October: World Orphan Drug Congress 2025

October: International Consortium for Fibrous Dysplasia and McCune-Albright Syndrome (ICFDMAS)

October: Symposium on cross-border healthcare in the DE-NL border region

November: Functioning Neuroendocrine Tumour Syndromes: Biochemical, Gemetic, Imaging Wrokup and Therapeutic Management

December: European Neuroendocrine Association

May 2026: European Congress of Endocrinology (ECE) 2026

May 2026: UEMS Congress from European Union of Medical Specialists

September 2026: European Society of Paediatric Endocrinology (ESPE) 2026

EVENTS

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Endo-ERN Coordinating Center: Amsterdam UMC
The Netherlands

© 2025 Endo-ERN, All rights reserved

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