SAVE THE DATE EuRREB webinar: Rare disease research and the value of registries

Updated June 17

Our colleagues from the European Registries for Rare Endocrine and Bone Conditions (EuRREB) will host a webinar on Friday, 27 June at 1600-1700.

Topics are:

Update on the registries’ activity and latest developments – Ana Priego, EuRREB quality manager, LUMC, Leiden, the Netherlands.

Rare disease research and EuRREB – Loren van der Hoeven, PhD candidate at Amsterdam UMC, Amsterdam, the Netherlands and Savi Shishkov, adult endocrinologist at UMHAT “St. Marina”, Varna, Bulgaria.

Webinar summary

WebinarRare disease research and the value of registries
DateJune 27th, 2025
Time16:00 – 17:00 hr
RegistrationRegistration is closed
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